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Re: von Willebrand's ANYBODY !!!!!
From: Dawn (anonymous@obgyn.net)
Fri, 30 Jul 1999 19:55:17 -0500 (CDT)
Dr. Marchbein: Thank you for your reply. She is now diagnosed as vW
Type II M. They are inducing her this Sunday at midnight. We hope for
the best!!
Dawn.
At Mon, 26 Jul 1999, Harvey Marchbein. M.D. wrote:
>
>At Sun, 25 Jul 1999, Dawn wrote:
>>
>>I posted original questions on July 19. Have rec'd no input whatsoever,
>>not surprising as many do not know about this disease. But do ANY of
>>the doctors out here?? Can anyone help by answering our questions? My
>>daughter is scheduled to be induced on August 2, in only ONE WEEK!!.
>>Please, if any doctors can answer our questions..please feel free to do
>>so.
>>
>>Thanks.
>
>I went back and got the posting so I could help. For all you out there,
>if a question is not answered, please restate the question in its
>entirety.
>
>"My daughter, first pregnancy, age 20. Diagnosed with Classic Type I
>vWillebrand's
>Disease at age 15. Extreme bleeding during periods. normal Factor VIII
>levels,
>EXTREMELY low ristocetin cofactor (.28). Her pre pregnancy bleeding
>time varied
>between 9-15 minutes.
>
>-OK-
>
>Small uterus, is under care of high risk OBGYN, who has NOT ever
>delivered a
>vW patient before. Also has haemotologist (actually two, one local, one
>an hour
>away where she is to deliver).
>
>-Small? vonWillebrands doesn't make it small. Hematologists are a good
>idea.-
>
>We JUST found out she cannot have any spinal anesthesia !! GADS !!. We
>didn't
>know that. They are to induce her on August 2nd.
>
>-Spinal anesthesia may disrupt a blood vessel because it is done
>carefully, but by feel, not direct vision.-
>
>What if any problems with excess bleeding are common to vW patients at
>delivery? We were told that Classic Type I vW patients usually bleed
>much more
>from mucosa membranes. Is this true? and does that make delivery MORE
>of a
>problem?
>
>-Usually, vonWillebrands patients do very well without problems.-
>
>We have also been told that the delivery should be unremarkable, but the
>chance
>of hemorrage during the post delivery time (up to 8 weeks post delivery)
>is the
>REAL concern?
>
>-Possible but small.-
>
>Also, we have learned that the baby stands a good chance of being vW
>also, it is a
>girl, they are guesssing 7.5 - 9# at birth.
>
>We were warned about cerebral hemoragge of the baby.
>
>-Possible but not common.-
>
>ANY help to either enlighten us, or dispel fears would be GREATLY
>appreciated.
>We live in a small upstate WV community and NO one has ever even HEARD
>Of
>vW Disease up here. She is being treated in Youngstown Ohio. The
>hospital is a
>regional Hemophilia Treatment Center.
>
>-You don't get better than the Regional Hemophilia Center.-
>
>Thanks for any replies !! "
>
>--
>Harvey S. Marchbein, M.D. FACOG, FACS
>Great Neck, New York
>http://www.obgyn.net/states/bios/marchbein.htm
>http://www.obgyn.net/women/advisors/harveym.htm
>
>**Note: Opinions expressed here are for educational purposes only
>and, as such, do not constitute a physician-patient relationship.
>This information is not intended to supplant the need for you to
>consult with your physician prior to choosing therapeutic options
>and/or interventions.
>
>**Private emails cannot be entertained due to time constraints,
>consequently no private emails will receive a response.
>
>**Thank you for your understanding ;-)
>
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