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Re: What is it going to take for the MD's to entertain the notion that PTLS may possibly be a real syndrome?From: Cheryl (anonymous@obgyn.net)Thu, 30 Apr 1998 13:44:41 -0500 (CDT)
At Thu, 30 Apr 1998, Joseph Pastorek, MD wrote: > >At Wed, 29 Apr 1998, Cheryl wrote: >> >>Okay, I have gotten several responses to my posting about PTLS. If so >>many women have the same symptoms post-tubal, why not admit it is a real >>problem and find ways to help us other than a hysterectomy or birth >>control? I am only thirty-two years old. Women my age don't normally >>get hysterectomies. That is supposed to happen when we are past our >>child-bearing years, or so I thought. >>I have not been able to successfully take any form of birth control I >>have tried in the past. I got my tubes tied so I would NOT have to take >>the pill. It is redundant. I do not intend to begin to take it now or >>at any future time. I have the right to choose not to. So, my only >>other alternatives are to live with it or have a hysterectomy. Or so >>the one MD said that responded. Wow, what a choice. This MD does not >>have to live through what I and many other women have to live through >>from month to month. It is easy for him to say that. Sorry if I ruffle >>a few feathers with that. >>This is a sore subject with me. My ob-gyn NEVER made any mention of >>this kind of complications post-tubal. Given this kind of information I >>never would have had this procedure performed. Just because PTLS is not >>recognized by the medical community that is no reason for women not to >>be told about the possibility of the same kinds of symptoms I and MANY >>other women experience post-tubal. >>Here is a question for the MD's. Of the total number of women that have >>had tubals, how many experience the same kind of symptoms described by >>those of us that suffer from PTLS? sorry, I believe completely that it >>exists. I experience these symptoms month after month after month. >> Any feedback is welcomed! Thanks!! >> >>-- >>Cheryl M. Rock >> >Cheryl, > >Some doctors believe in PTLS and some don't. Some literature reports >suggest that it exists, and some say it doesn't. I think it's important >for a doctor to discuss the topic before doing a tubal ligation for the >simple reason that there's no cut and dry answer to the question. The >patient should be informed. > >If you believe in PTLS, then there ARE some things which must be >considered. The LEAST damaging method of performing the tubal ligation >is supposed to have the least chance of resulting in PTLS. So a clip is >better than taking out an inch of tube. Also, one must always be aware >of the "off the pill" effect. If you're on birth control pills for >years, with light and regular and comfortable periods, and then you have >a tubal ligation and get OFF the pill, your periods are going to get >heavier, hurt more, etc, etc. This would NOT be PTLS, but rather the >effects of being off the pill. > >Anyway, I sympathize with your plight. Up to now, the only ways I can >see to treat what you have are 1) hysterectomy, 2) pills, and 3) >endometrial ablation (not necessarily well-accepted but seems >promising). > >Dr. Joe > >--Dr. Joe-
Thanks for the reply. I appreciate it. I have a question. Would
reversing the tubal have any affect on the symptoms experienced by those
of that suffer from PTLS? If we restore the proper functions of the
tubes and other female organs, would that not help alleviate the
symptoms, hopefully even stopping them altogether? I am only guessing on
this, but it seems logical to me. I know things don't always work like
you think they should, but the thought has crossed my mind of trying to
convince my ob-gyn that having a reversal would help me. And the
possibility of having another child down the road is appealing to me as
I would not mind having another little one running around! :o)
I realize that not all tubals are reversible and it is very costly. My
insurance company says they don't cover it, but if it is medically
necessary to solve the problems with my PTLS symptoms, maybe they would
reconsider. Mine was performed in august of 93. As of yet, I have not
been diagnosed as having cysts or any other tumors, but do have a
fibroid on the back of my uterus that was found by a doctor well before
I ever had my tubal.The ob-gyn said he transected and ligated my tubes.
I am not sure what that means, so this may have a role in whether or not
it is reversible.
Maybe I am way out in left field with this theory, if that is the case,
please clear things up for me. I am just an average woman who has a
limited medical background, no professional person in this field. This
just seems to be a logical idea to me. Thanks!!
>*************************************************
>Joseph Pastorek, MD Some things are just more
-- Cheryl M. Rock
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