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Re: Mayer Rokitansky Kuster Hauser Syndrome/absent uterus/vaginaFrom: Laurie (anonymous@obgyn.net)Thu, 29 May 1997 06:24:54 -0500 (CDT)
At Thu, 29 May 1997, Sheryl wrote: > >I am the director of Women Encouraged, a pen pal support network for >women born with Rokitansky-Kuster-Hauser Syndrome. I >hope to let other women with this disorder know that our organization is >limited in resources and time, but we are here to help whenever >possible. We are also looking for any journal articles which address >this disorder. Thanks! >-- >Sheryl Sesack > I've been looking for a support network for a patient of mine with this disorder. Couldn't find anything on the Net. Do you have a conventional mailing address, as she is not online? Also, I have a few articles about creating a vagina using vaginal dilators. If you are interested, please contact me off list.
-- Laurie Lovely, MD RE fellow, UNC-Chapel Hill
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