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Re: Mayer Rokitansky Kuster Hauser Syndrome/absent uterus/vagina

From: Laurie (anonymous@obgyn.net)
Thu, 29 May 1997 06:24:54 -0500 (CDT)


At Thu, 29 May 1997, Sheryl wrote: >
>I am the director of Women Encouraged, a pen pal support network for
>women born with Rokitansky-Kuster-Hauser Syndrome. I
>hope to let other women with this disorder know that our organization is
>limited in resources and time, but we are here to help whenever
>possible. We are also looking for any journal articles which address
>this disorder. Thanks!
>--
>Sheryl Sesack
>

I've been looking for a support network for a patient of mine with this disorder. Couldn't find anything on the Net. Do you have a conventional mailing address, as she is not online? Also, I have a few articles about creating a vagina using vaginal dilators. If you are interested, please contact me off list.

--
Laurie Lovely, MD
RE fellow, UNC-Chapel Hill



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