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Re: Mayer Rokitansky Kuster Hauser Syndrome/absent uterus/vaginaFrom: Sheryl (anonymous@obgyn.net)Thu, 29 May 1997 02:59:01 -0500 (CDT)
I am the director of Women Encouraged, a pen pal support network for women born with Rokitansky-Kuster-Hauser Syndrome. Women afflicted with this disorder experience the absence/malformation of the uterus, vagina, and cervix. Some women with MRKH also have kidney anomolies and/or skeletal anomolies. I have already been contacted by Elizabeth, and hope to let other women with this disorder know that our organization is limited in resources and time, but we are here to help whenever possible. We are also looking for any journal articles which address this disorder. Thanks!
-- Sheryl Sesack
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