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(for kayla) Starting Lupron in a few weeks, what should I know?From: anonymous@obgyn.netTue, 18 Jun 2002 20:44:42 EDT
Hi Kayla, The sooner you stop having the drug administered, the better your chances are for avoiding damages...though it's not foolproof. I know of a couple women who had bad osteoporosis after little more than one month into treatment. You might want to ask your doctor for a dexascan to check your bone density, blood tests (such as a CBC, metabolic panel, thyroid panel, Ig-antibodies panel, ANA) and a visual checkup (especially checking the optic nerve for signs of enlargement) as close to stopping the drug as possible. Negative test results do NOT guarantee that you're "ok" or "safe" from damages, though. Small amounts of osteo can be present without showing on dexa, arthritis or heart conditions may not show at all, and certain other conditions like cancers may not show up for years, so it's important to get regular checkups and watch for development of symptoms for many years. I highly recommend people give their doctors copies of the Red Flags article and some of the material from the Lupron Victims network...some of them find it very suprising to read. It never ceases to amaze me how many doctors don't understand the long-term effects of this drug.
>>> I strongly believed that my gyn prescribed the syneral as a last This is often the case, and I'm sure she meant well and was trying to help you. The trouble is that in many cases, it's not going to solve the problem, it will exacerbate it. So often what people do not understand is that when you stop the drug and your body starts to function normally again, the hormones are all out of whack and produce more estrogen than usual, to compensate for the loss. More estrogen creates the ideal situation for the recurrence of the endo, and the problem starts all over again, often more severely than before. That's why it's SO important for patients to research any and all drugs before taking them, especially drugs that cause major alterations in the hormonal function of their bodies. Unfortunately it's more commonplace for patients to just do "what the doctor says" and assume that they're aware of all potential dangers and wouldn't prescribe something hazardous. The fact is though, doctors are just humans like the rest of us, in the business of helping people. They cannot and do not know every risk and effect of every drug they prescribe. There has been no drug recall as of yet, the FDA has done essentially nothing, and books they commonly rely on such as the PDR have extremely limited information. There IS more information out there, but busy doctors with patients and meetings and families etc. don't have the time to go digging through medical libraries or piecing information together on the net. It does help though when they are made aware by patients of articles, investigations, etc. As far as I know, there's a much higher risk with laparotomy than with laparoscopy for infections. The incision is larger and the procedure is more involved. I had a minor skin infection and fever after my laparoscopy, but it wasn't too bad. What did you have the laparotomy for? Take care! Kas
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