WOMENS-HEALTH Messages for January, 2002: Re: Hi....endo treatments...no where left to turn.......?

Re: Hi....endo treatments...no where left to turn.......?

From: Robin (anonymous@obgyn.net)
Thu, 31 Jan 2002 11:43:56 -0600 (CST)

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>Anyways...after the procedure I started on Lupron...which actually did
>work pretty well...I completd a "9" month course of the Lupron...and
>just recently got my period back...Well..the cramps, back pain, etc. are
>terrible, so bad that I can't even get out of bed without almost passing
>out. I went to see my gyn and she recommended another 9 month course of
>Lupron. I told her that I wasn't so sure about taking the Lupron
>again...due to unknown long term side effects...She didn't even listen
>to me...she just pretty much said that's what we're gonna do. I am a
>RN..and have a pretty good grasp on things...but it didn't matter. She
>said that a repeat laparoscopy would be of no use because it clearly
>didn't help the first time and that endo. can be so deep, or
>microscopic, etc. that it would never be able to be all removed unless
>I went to a "endo expert" and that it would be too expensive. I can't
>go on with this pain anymore...and don't want to take the Lupron
>again..I just don't think it's safe....please help me. Also...since my
>last period..I have had a continuous pulsating pain on my right
>side....The GYN. didn't even examine me...she just did a consult. I
>really liked her at first...but now?
>
>--
> What else can I do....
>Thanks...Olivia
>

Olivia,

I don't blame you for not wanting to do Lupron again. It is your body, and you can decide what you want, and if you do not want Lupron, your MD doesn't have the right to say what she did!

Endo Specialists are not necessarily that expensive. My Endo Specialist didn't really charge more than my OBGYN. My OBGYN was able to say he was not qualified to treat my Endometriosis, as it was too advanced for him. Your MD's ego seems to be in the way here.

I see Robert Albee, MD of The Center for Endometriosis Care, in Atlanta, GA. He is in with Thomas Lyons, MD.

Your Endo can be taken care of. You need to find the person that has experience in treating the disease. I did that, and am endo free 3 1/2 years later!

-- Robin

-- ~Robin~

NO PRIVATE EMAILS!

List Owner, Chronic Pain Support Group http://groups.yahoo.com/group/ChronicPainSupportGroup

I'm not a Dr. or any type of Medical Professional. The information I share is based on what I have experienced personally or what I have learned.

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