Re: Nerve damage at time of hysterectomy
From: Robin (anonymous@obgyn.net)
Tue, 27 Jun 2000 21:05:05 -0500 (CDT)
Hi Karen,
I am so sorry for what you are going through right now. I'm not a Dr.
or medical professional of any sort, but wanted to offer my support to
you.
I don't know who you saw out of state for the pelvic pain, but thought I
would offer the name of mine to you. Don't know if he can help, but it
might be worth the phone call. His name is Robert Albee, MD of the
Center for Endometriosis Care (http://www.centerforendo.com). He treats
all types of pelvic pain. He has a partner, and his name is Thomas
Lyons, MD. I have met and spoken with Dr. Lyons on a few occasions,
and he is also very nice. Dr. Albee has been wonderful to me. I don't
have the toll free number handy, but if you go to the website, it will
be listed there.
Hope this is of some help. Again, I am sorry to hear of your pain. I
do know what it is like to have something, and they've run out of things
to do.
Hugs to you!
Robin
At Tue, 27 Jun 2000, anonymous@obgyn.net wrote:
>
>Dear Kind Doctors,
>
>I have been reading this Forum for quite some time now. I am hoping that you
>can give me your opinion on the following as a treatment method, or provide
>me with a "last-ditch" suggestion for an alternate treatment. I had a
>TAH/BSO Jan. 99. I was 40 years old at the time and the hyst. was done due
>to frequent menses and a fibroid uterus. From the time I woke up from that
>surgery to present day, I have been in terrible pain (an 11 on a scale of 1
>to 10) the first 8 weeks post-op, and a 7 to 8 all the days since. I have
>had every imaginable test, 2 additional surgeries, seen and been treated by
>the best doctors and neurosurgeons (including a pelvic pain specialist that I
>went to out-of-state). I have a wonderful new gynecologist who has tried so
>very hard to help me. We tried trigger point injections many times, all to
>no avail. I am currently seeing a pain anesthesia doctor who also is trying
>very hard to help me. We have tried Lamictal, a medication to help block the
>pain; and most recently a nerve block to the ilioinguinal and iliohypogastric
>nerves. Unfortunately, these did not work either. This afternoon my pain
>doctor called to tell me he is scared to death to take this any further. Some
>have suggested cryosurgery, others radio frequency nerve ablation, the
>topnotch specialists all say ..."don't go there, it's absolutely too
>dangerous." "You think you've got a problem now, you have no idea what the
>outcome might be." My pain doctor agrees. I agree too, I can't imagine it
>being any worse than it already is. I was so sad when I got off the phone
>with my doctor. I have tried so hard, for so long, to be brave. Now I am
>crying and I can't stop. I feel like there's no where else to turn, no more
>options to make me feel better. This is why I am finally coming to you. Do
>you know of anything, anyone, or anywhere else I could go? I feel like I
>have lost all hope. Any advice you can offer would be greatly appreciated.
>
>Thank you,
>Karen
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