Re: **Negative Pelvic CT & Pelvic sonogram** Endo in tissue??
From: Robin (anonymous@obgyn.net)
Wed, 10 May 2000 06:25:32 -0500 (CDT)
Connie,
I am sorry for what you friend is going through, and am sorry for the
way in which she was treated by the Dr.
Endo does not show up on a CT or Sonogram, so just because they were
normal doesn't mean she doesn't have Endo. Unless ALL of the Endo is
removed (excised) during the surgery, she can still have problems. Just
doing the TAH/BSO doesn't take care of it.
I don't know where your friend is located, but there are several Drs.
around the country that deal with Endometriosis. I went to Robert
Albee, MD in GA. His website is full of information, past newsletters,
etc. The address is http://www.centerforendo.com. Dr. Albee does
excise the Endometriosis until the implant has been removed. More Drs.
are now starting to do this, but there aren't many.
If GA is too far away, and you would like to know if there is anyone in
your State, just let me know where you live, and I can find out who, if
anyone, is the closest to you.
I wish your friend much luck, and hope she is feeling better soon!
--
Robin
At Tue, 9 May 2000, Connie wrote:
>
>Hi, This question is for a friend for was seen by a so called pelvic
>pain specialist who told her that he simply will not do a laparoscopy
>because of pelvic pain alone..she has been battling this for years! She
>has had severe endometriosis & adhesions resulting in TAH/BSO. She had
>ORS and this was taken care of plus due to complications she had a colon
>resection. Now years later she is still having pain. Her regular gyne
>referred her to a "friend" of his who supposedly is treating chronic
>pelvic pain. From what she said this man was uncaring and very RUDE. He
>told her that since her CT & Sono was normal, he wouldn't do another
>scope. She is constantly on her feet and lifting patients and pushing
>and pulling since she is an RN who works in a Ambulatory Surgical Unit.
>She suggested endometriosis in the tissue and he told her point blank
>that he never heard of such a thing and didn't know what she was talking
>about.
>He told her that since narcotics don't help anymore and the
>anti-depressants that she tried didn't help, she should try
>hypnosis...he told her to "quit looking for a cause for her pain"
>basically....live with it! She is very upset and doesn't know where to
>turn.....my questions, could it be endometriosis in the tissue and
>should she continue to pursue finding a cause and subsequently seek
>help?
>Thank you in advance for your opinion!
>
>--
>Connie
>
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