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Jodi was Re: JUST DIAGNOSED...looking for info!
From: AdoptASAP (anonymous@obgyn.net)
Tue, 29 May 2001 12:35:31 -0500 (CDT)
RE: For example, you wouldn't think that dry, thick skin on the soles of
the feet could be related to PCOS... but for some reason, a lot of us
seem to have this problem
I DIDNT KNOW THAT!!!! Learn something new everyday about his menusing
disease. My feet have been like this since I was a young teen. My
heals crack and bleed and my pinky toe after a bath (even when wiping
dry) split and bleed at the toe-meets-foot joint. I can get pinky toe
rot very easily. Doomed if you do, Doomed if you don't.
++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++
At Tue, 29 May 2001, jodi wrote:
>
>1. I don't know specifics on these two pills, but tri-phasil pills
>start with a week of low dose, then are a wek of
>higher dose, then a week of highest dose hormones... They are supposed
>to better mimic your body's natural
>cycle. The problem with PCOS and tri-phasals is they don't work as well
>at supressing cyst formation,
>symptoms, etc. So, a mono-phasal pill (which I assume cyclin is?) is
>definitely better for PCOS. As to what
>ortho-cyclin will do for you, only you can discover that. :)
>
>2. Never assume every symptom you have is related to PCOS. On the
>other hand... never let anyone tell
>you that your symptoms are NOT caused by PCOS!!! Our bodies are complex
>machines, and hormones are
>powerful chemicals. There's no telling how your body might react to
>your own personal hormone
>imbalance. For example, you wouldn't think that dry, thick skin on the
>soles of the feet could be related to PCOS...
>but for some reason, a lot of us seem to have this problem. So, who's
>to say your imbalance is or isn't
>causing aches and pains, etc? The only way to know for sure is to see if
>these problems are alleviated with
>treatment.
>
>3. If your RE is only suggesting BCPs as treatment, and clomid when you
>need/want it, I would suggest another
>doctor. There is really no such thing as a one right type of doctor for
>PCOS... it's more a matter of finding
>a person who happens to be open minded about treating PCOS and happens
>to be a certain type of doctor. For some
>women, this is an RE. For others, it's a regular endocrinolgist, a
>gynocologist, or even just a general practice
>doctor who happens to be willing to learn and try new things. The RE
>and gynos I have seen were all morons.
>Some people have better luck. I see a regular endocrinologist now, and
>I'm very happy with her. If your RE
>is not addressing the whole cause of your PCOS - and by only suggesting
>BCPs & clomid, he/she is not - I
>feel you should find a doctor who will. Call around to other REs or
>endocrinologists, and see if any are
>treating PCOS with methods other than birth control pills. If you're
>told "No," or "You'll have to schedule an
>appointment and discuss this with the doctor," hang up and try again.
>
>Good luck!
>
>- Jodi
>
>At Tue, 29 May 2001, Deirdre wrote:
>>
>>I was just diagnosed with PCOS. An OB/GYN / Reproductive
>>Endocrinologist & Infertility doctor gave the diagnosis. He said I most
>>definatly have it, and has given me Ortho-Cyclen to start when I get
>>next mensus and told me when I want to concieve down the road, he will
>>start me on Clomid. But, these are my questions...
>>
>>1) What is the difference between Ortho-Cyclen (which is what he gave
>>me) & Ortho-TriCyclen? Is there a chance I will have success with this?
>>
>>2) I have had other symptoms that he said are NOT related to PCOS,
>>although I have read that they can be. Such as joint & muscle
>>pain...also, I have involuntary muscle movment/spasams. And the list
>>goes on. Does anyone know of a connection between PCOS &
>>Fibromyalgia???? I believe I may have that as well.
>>
>>3) Should I also see a Endocrinologist & Diabeties Dr. besides just the
>>Reproductive Endocrinologist/Ob/Gyn that has diagnosed me?
>>
>>ANY & ALL INFO WOULD BE APPRECIATED!!!!! THANK YOU!
>>
>>--
>>Deirdre
>>
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