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Re: Apert's syndrome support groupsFrom: fuf@gulf.netMon Aug 12 23:03:02 1996
>I need the names and phone numbers of organizations that have support groups >for parent's of infants with Apert's. Dr. Moreno (and members of The List), The most complete list of support groups for genetic conditions can be found at the following web address: http://www.kumc.edu/GEC/support/supgroup.html
>From this list, I found the following information for support groups for About Apert 9 Jones Street New York City, NY 10014 Phone:(212)645-7038 Contact: Augusta Apert Syndrome Pen Pals PO Box 115 Providence, RI 02901 Phone:(401)421-9076 Contact: Christine Bucci I hope this information is helpful. Gary Gary E. Kleinman, MD Perinatologist/Geneticist University of FL/Pensacola 5045 Carpenter Creek Drive Pensacola, FL 32503 904 484-9400
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