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hemochromatosisFrom: Blayne Murray (midwife@stratos.net)Sun Jan 23 09:59:50 2005
A 41 y.o. dear friend of mine was diagnosed with hemochromatosis 3 weeks ago and has just discovered that she is pregnant. Last week, before she knew she was pregnant, she had her first phlebotomy treatment (500 cc removed). I don't have the labs from her hematologist yet, but she did remember that after treatment, her serum iron was 188, saturation 67%, and that these levels were HIGHER after her first treatment than before. She has had three healthy babies; I delivered her last one 7 years ago. She would like to have midwifery care again if she is not too high risk. I have zero experience with hemochromatosis and have not had a chance to consult with anyone else yet, so thought I'd ask here. What are the risks of pregnancy to both mom and baby with newly dxed hemochromatosis which is not under control yet? Can she continue phlebotomy treatment while pregnant? What should her target levels be? Any other info or resources that you can recommend? Thanks, Blayne Murray, midwife
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