Re: Luperon: Dangerous Side Effects???-to Kami
From: margaret (anonymous@obgyn.net)
Thu Sep 30 14:34:56 2004
Kami,
P.S. Stay strong and don't let any doctor make you feel less of what
you really are. I am glad you got to vent because trust me we all need
to do that, but you just keep up your fight and one day their will be an
answer.
I AM WOMAN; HEAR ME ROAR
Margaret
At Thu, 30 Sep 2004, kami wrote:
>
>Margaret~
>
>I totally understand what you went through with your side effects and
>your doctor. I'm sorry your doctor was such a jerk. I just had a
>doctor say to me, after I explained to him that I'm highly sensitive to
>most meds, and that my past experience with Lupron, (I was on it when I
>was 25 and am now 27), gave me the joint pain, memory loss, hot flashes
>continually, wild mood dilemmas (I felt like a total meany) etc. He
>then said...what did you do, read the owners' manual on Lupron and
>basically say you had all the possible side effects there are for the
>drug? See, he wants me to go back on it, and I'm not at all willing. I
>was utterly irked at the man, and this was my first visit with this all
>supreme doctor who came so utterly highly recommended by so many other
>doctors and females. He could have fooled me. Sorry...this just
>happened the other day...I needed to vent. But, yes, this drug is
>rather abrassive for some ladies indeed, and others find it far more
>tolerable. I just hope, Margaret, you're feeling better.
>
>Take care of yourself...
>
>--
>kami
>>>Hi Emily, I just wanted to say that Lupron is a personal decision and if
>>>you are taking it and feeling relief and have a supportive doctor then
>>>that is great. You did ask what other women have gone through so I am
>>>going to tell you my experience(no exaggerations & I never had any of
>>>these symptoms before Lupron).
>>>
>>>I went to a specialist in Fla that hyped up Lupron and told me that it
>>>was a medical menopause and I would have some hot flashes and night
>>>sweats, but nothing that isn't tolerable. He emphasized on the
>>>positives, that it would stop my menstrual if not with the first shot
>>>then definitely with the second. He went on that I would have so much
>>>relief and afterwards I would beable to get pregnant and have relief for
>>>at least 2-3yrs. Of course, that sounded great to me and I said lets do
>>>it(i wasn't into endo groups or even know they were around at that
>>>time). I was living in Ga, so I drove 5 hrs to get to this doctor in
>>>Fl.Let me add that I was 20yrs old and a newly wed.
>>>
>>>So, I started the Lupron and the first shot I felt some side effects,
>>>but thought I could deal with them and I also got my period which didn't
>>>seem like a problem because he warned me of that. So towards the end of
>>>my first shot and the start of my second I started feeling really bad. I
>>>was on the floor in constant pain, I was having horrible hotflashes,
>>>migraines, bloating, and night sweats.
>>>
>>>Then I took the second shot, it just got worse. I still hadn't stopped
>>>my period, I was in constant pain and agony, hot flashes were so bad at
>>>night that I would wake up in the morning covered in wet rags that my
>>>husband would lie on me to cool me off(i was so hot he couldn't even
>>>touch me). I called my doctor and the nurse wouldn't let me speak to
>>>him, so she told me she was going to call in a prescription to lesson
>>>the side effects.
>>>
>>>Now on to my third and thank God the last shot(i was supposed to do
>>>6mths). I took the medicine as I was told and nothing happened it was
>>>just getting worse. I still had a period on the third one(which he said
>>>that would never happen), plus I was in horrible pain, I had the worst
>>>nausea(to the point of passing out), continued having hot flashes,
>>>migraines, night sweats(changed my nightie 2-3x a night), and I gained
>>>35 pds in 3mths. I continued to try and reach my doctor and the nurse
>>>wouldn't let me speak to him without an appt(they new I was in GA), by
>>>that time I felt it was worth the drive to go and see him. My mom and I
>>>went to see him and I confronted him. He lied to me, saying that it was
>>>normal to have your period through Lupron and he warned me about all the
>>>side effects I was dealing with and this is my favorite, he told me that
>>>I was getting fat because I was a newly wed and that I just need to
>>>except that (i was a lifeguard and swimming everyday, the cool water
>>>felt so good, plus I didn't look like a normal big girl I looked like
>>>the pillsbury dough boy if you poked me I would have probably popped). I
>>>began to cry and tell him I just want some help. He then threw a box of
>>>tissues at me(literally) and then I started crying harder(it seemed like
>>>something out of a soap opera) that is when he got up and began to yell
>>>at my mother and I and told us to get out that I was no longer his
>>>patient(i already decided that for myself) and jumped up and almost hit
>>>my mom trying to get out. (that is why i say make sure you have a
>>>supportive doctor and he has you doing Lupron because he believes it
>>>will really help you and not because you are his lab rat).
>>>
>>>Now, I deal with constant hotflashes and night sweats. I have to turn
>>>my thermostat to 50 at night, which freezes my husband and our dogs, but
>>>it can't be any other way. I still deal with migraines and since then I
>>>have been dealing with memory loss more and more as time goes on. I
>>>can't excercise anymore other than in the water because it hurts my
>>>joints so much. I have severe problems with my back and have to get
>>>therapy for that and still have no children (5yrs of marriage and
>>>trying). Please, understand that before this I was a cheerleader,
>>>tennis player, swimmer, softball player, just an all around girl that
>>>loved to have fun. Now, I am happy to get up and play with my dogs.
>>>
>>>Please, research it and go with your gut. I think its great that you
>>>are inquiring and getting other womens stories. For me, it was hands
>>>down the worst thing that I have ever done to/for myself and personally
>>>wouldn't ever recommend it to any of my family, friends, or worst
>>>enemies. I do wish you luck and their are a few women who would
>>>recommend it. Just remember, we are all made differently and react
>>>differently, so good luck and God bless.
>>>
>>>Margaret
>>>p.s. I lost 15pds in a mth after stopping Lupron because it was water
>>>weight, swelling, and bloating. The other 20pds were gone within two
>>>mths with a little extra work. (Fat because I was a newly wed; what a
>>>shmuck!)
>
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