ENDO Messages for September, 2004: Re: I had an idea

Re: I had an idea

From: Amy (anonymous@obgyn.net)
Wed Sep 22 11:05:18 2004

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Whoa! I don't think anyone was tooting their own horn, nor trying to reinvent the wheel. I personally did not know that there was a yellow ribbon campaign for endo and I feel that I am pretty current on what is going on. I don't consider myself to "live under a rock" as you put it. As far as changing the ribbon color, I think people only suggested changing the endo ribbon to a different color so people would not mix up the endo cause with the ribbons to support the troops. Yellow has long been a show of support for the military. I remember being a young child and seeing all the yellow ribbons tied around trees to support the troops and hostages in Iran. While it may reinvent the wheel, a different color could simply make the cause stand out more. That is just my thought on what people were thinking.

While I agree that we should investigate more about what is already being done before we beat anyone up for not doing anything, I personally felt beat up reading your response! Nothing like getting on the forum for some comfort and end up feeling like you are stupid because you are not as aware of current events, legislation,etc. as SOME people. Many women new to endo may not know some of the things that are in progress already. It takes some time to learn and research. Even if I had been aware of the yellow ribbon campaign and not replied to Jenni that I thought she had a great idea, I definitely would not have sent a response to slam her for trying to be helpful. Fighting endo is hard enough without getting slammed on a support forum for simply not knowing about all the current information.

Non-anonymous Amy Meyer!!!

At Wed, 22 Sep 2004, anonymous wrote: >
>Again - I'm sure the EA and the ERC do not need any "nudging," since
>they've been using the yellow awareness ribbon for the last [at-least] 8
>yrs. It was a yellow ribbon before the troops went overseas, for the
>person who didn't want to "share" with another cause. I really don't
>think that just because you didn't know about the ribbon and that the
>ribbon for troop support is yellow also that we need to reinvent the
>wheel and change the color now after all these years.
>
>Sometimes I just read these posts and shake my head. People come on
>here and complain that there is no awareness, there is no legislation,
>that everyone should write to Oprah, etc. etc. etc. There should be a
>primer for posting on this website:
>
>1.) there IS a ribbon and a VERY HUGE awareness movement for Endo. Just
>because you don't know about it, doesn't mean it doesn't exist. Before
>you start your petition or make your phone calls - see what's already
>been done.
>
>2.) Oprah HAS done a show on Endo. It was awful. Forget it. The end.
>
>3.) There IS a HUGE legislative campaign in the works and has been for
>years already! - including a national awareness resolution and several
>state ones. Awareness month is March every year.
>
>It's great to be an activist. In fact, it's necessary. But instead of
>competing with programs already in place and bashing the organizations
>for not doing anything - when they ARE doing stuff and you just live
>under a rock and didn't know it - try helping the programs that already
>exist! Contact the EA or ERC - instead of worrying about "nudging" the
>organizations to do stuff, people should check with them first to see
>a.) WHAT they have ALREADY accomplished and b.) what they can do to HELP
>those organizations. Coming here and reinventing the wheel is really
>doing nothing other than tooting your own horn.

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