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Re: I had an idea
From: Amy (anonymous@obgyn.net)
Tue Sep 21 09:20:58 2004
Jenni,
I think this is a fabulous idea and I definitely agree with Amy Meyer
about getting the Endo Research Center and this website involved - the
more people that see it, the better. And I really don't know how much
more embarrassing endo is compared to breast cancer and you see pink
ribbons everywhere - even on your cereal box. I come from a whole
family of Endo sufferers... my mom, all of my aunts on both sides of my
family, and both of my grandmothers have had hysterectomies due to Endo.
Let me know if you need help getting this together... maybe we should
all send letters/emails to the Endo Research Center as a little extra
nudge.
- Amy Porter
At Tue, 21 Sep 2004, Amy wrote:
>
>Great idea! I say go for it. I will personally display or wear one.
>Maybe we could get the Endo Research Center and this website involved
>somehow. What does everyone else think??
>
>Hugs!
>Amy Meyer
>
>At Tue, 21 Sep 2004, Jenni wrote:
>>
>>I don't know if this will catch on, but I thought I would suggest it to
>>all of you and see what you think.
>>I've noticed for just about every cause out there we have some colored
>>ribbon to wear. Yet we have do not have a ribbon for Endo at this time.
>>(At least not any that I've heard of.) Some of us with Endo complain
>>that not enough people know about Endo to do anything about it, or help
>>raise money for research. Sense, we are in a colored ribbon craze I
>>think a colored ribbon for Endo would be great. Now some may say that
>>it's to embarressing to do that, or that it's to personal a problem, but
>>if we're afraid to make the world know about this disease how are we
>>ever going to expect the doctors to find a cause or cure for it. Besides
>>isn't it more embarressing to have to go to the doctor every other week,
>>and get run through the same exames just so they can tell you what you
>>already know, and have them perscribe you a pain killer that really
>>isn't doing any good anyway -- I know not everyone is embarressed to
>>talk and speak out about this disease, but I was just addressing those
>>people ahead of time. Anyway back to my orginal point. If anyone
>>thinks this is a good idea and would like to help get this organised
>>please contact me at oleanader@msn.com or on here of course. I'm open
>>to any suggestions for the color. My mom suggested maroon, or a dark
>>red color.
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