Re: ally tough day
From: Mindy (anonymous@obgyn.net)
Fri Sep 17 21:32:31 2004
I agree with Lori and I feel bad I didn't post a solution for things to
do in the mean time!
I have heard Progesterone has helped some. I personally refuse all
hormone treatment, but think it can work for some. Also, acupuncture
works great. I understand there are herbal treatments, as Lori
suggested, as well. I am not familiar with these types of remedies for
pain. I also heard BCP's can help with pain....again, I don't recommend
hormone therapy, but it does work for many women.
Anyhow, I would definitely look into Dr. Redwine.....it can't hurt to
write him for his opinion.
Ploease let us kow if there is anything else we can do!
Mindy
At Fri, 17 Sep 2004, Lori wrote:
>
>Hi,
>Its Lori again. I think Dr. Redwine sounds wonderful as also Dr. cook
>does. If I were to have to have surgery I would certainly look them up,
>but in the meantime while thinking about that, what if you went to the
>health food store & looked into natural progesterone cream? I understand
>that you are in the medical field & most do not believe in it in the
>medical industry. One of my friends is a nurse...but I must tell you
>that I live pain free 80-90% of the time now because of it & it has been
>that way for 3 years. I lived 17 years with major pain.
>
>Of course their are months when I forget doses & such & have period pain
>for about 5 hours. I had my progesterone levels checked & they are
>equal to the amount a pregnant woman puts out. So the cream no doubt
>increases that hormone & in turn balances the estrogen.
>
>Previosly I went the herbal route. It worked great!!! but no way could
>I afford this dr. at 800.00+ a month, but the point is it worked! Now I
>see a naturopathic dr. quite a bit cheaper where I use the cream,
>supplements, diet & more. I can say clearly that I have the
>endometriosis problems: pms, bowel... under control now. I have had
>the disease 20 years. I am suffering with chronic fatigue right now as
>my main problem, but improvements are happening with that also with
>taking B5 & high doses of vitamin C-well quite a bit more supplements
>also....
>
>--
>Lori
>http://www.theendoclub.com
>At Fri, 17 Sep 2004, Mindy wrote:
>>
>>All I can sit here and say is NO NO NO! I am reading your post shaking
>>my head NO!
>>
>>Please do not have the hysto....PLEASE! There are doctors out there that
>>can help you. A hysto at your age is not the solution be any means.
>>
>>The fact that a doc would suggest this at your age is so shocking to
>>me.....please look into some of the true specialists such as Dr. Redwine
>>in Bend, OR.....I have heard that there is a doctor in Atlanta, Georgia
>>as well. I personally, based on experience, recommend Dr. Redwine.
>>
>>I am so sorry if this is coming across wrong.....but please do not make
>>such a life altering and permanent decision until you look into seeing
>>one of these specialists.
>>
>>By the way, how were you diagnosed and what was your treatment?
>>
>>Please feel free to email me personally.....anytime!
>>mjdrwall@yahoo.com
>>
>>Here is a great website....
>>
>>http://www.endometriosistreatment.org/
>>
>>Mindy :-)
>>
>>At Fri, 17 Sep 2004, Lori wrote:
>>>
>>>Hi Kim! I am sorry for the rough time you are having. I do not want to
>>>offend you in any way but the 1st thing that came to mind is that maybe
>>>their is a reason for postponing that surgery. Oh I know we all want to
>>>be pain free! & healthy, free from this stupid disease...but perhaps
>>>their is another plan for you here. When things like this happen in my
>>>life I take it as a sign that maybe this is not the road I am suppose to
>>>follow. You know also women do get pregnant under the worst possible
>>>circumstances, when Drs. have told women that their is no hope. It
>>>happens quite often! You just never know. I do not know your entire
>>>story about the reasons you feel it will never happen, well endo of
>>>course but perhaps more?
>>>Maybe their is also another route that you can follow for treatment for
>>>this disease also? Hey I do not know it all, just my initial thoughts. I
>>>hope you feel better!
>>>Lori
>>>
>>>my story
>>>http://www.theendoclub.com
>>>
>>>At Fri, 17 Sep 2004, Kim wrote:
>>>>
>>>>Hi guys.... just thought I'd write for a minute to get some stuff off
>>>>my chest. I know at least one of you had to have as bad of a day as I
>>>>did (hope not.) I have come on here before and said how tough it has
>>>>been lately to stay in school and put in all the insane clinical hours
>>>>and late nights for study for this last year of nursing school.... but
>>>>today took the cake. I have recently scheduled my hysterectomy for
>>>>december.... not that I am looking forward to it or anything, but it is
>>>>at least something concrete that may help with the pain (since Lupron
>>>>and everything else has not.) So, I started my "mother /baby" rotation
>>>>this morning and I didn't think it would bother me. I am 25 and have
>>>>been married for about 7 years, no kids. My husband really wants kids
>>>>but I have known for some time that it just wasn't going to happen. So
>>>>today was a little tougher than I thought it would be; we have to spend
>>>>alot of time in the nursery and then some time with the mothers and the
>>>>babies in their rooms. It wasn't the actual baby part that made me
>>>>sad.. strangely enough it was the way that the fathers were looking at
>>>>their wives.... they were in awe and seemed so proud and loving... it
>>>>just broke my heart to know my husband won't ever look at me that way
>>>>(yes... I'm having a pity party right now.) To top it off we went over
>>>>the clinical schedule and the final exam schedule and classes are going
>>>>to go all the way into december instead of just the beginning, so now I
>>>>have to either cancel the surgery because we start back in January and
>>>>the only way I would have enough time to heal is if I did the surgery in
>>>>the beginning as planned. SO.... I am trying to figure out what to do
>>>>and will have to break down and tell my professor what is going on and
>>>>see if she will work with me etc. I am just sick of worrying about this
>>>>whole thing- Thanks for listening. Usually I would have whaled to my
>>>>husband but he is at a Red Sox game and isn't too sympathetic when it
>>>>comes to the "kids" issue because he gets so sensitive. Thanks again,
>>>>KIM
>