Re: >>>>>Adenomyosis symptoms ------ Help! <<<<<<<<< To Britty
From: lisa (anonymous@obgyn.net)
Tue Sep 7 14:47:05 2004
Hi Britty
I just wanted to write you another message as it infuriates me to hear
yet another endo/adeno sufferer being told aload of ****! I had such a
hard time of it and spent all my time in and out of hospital as a
result.
Make sure you get a couple of medical opinions before doing something as
huge as a hysterectomy. I am not sure if you know (if you do please
excuse my explanation) but, endometriosis is the lining of the womb
(endometrial layer) found elsewhere in your body and adenoymosis is the
lining of the womb found inside the womb. A hysteroscopy is a small
scope inserted inside your uterus and thus they will be able to see if
you have it or not just as they test of endo. I think with any symptom
of endo or adenomyosis a hysterectomy is a last resort. I would advise
having this procedure and if they find out you have it you can maybe
temporarily relieve your pain (or at least illiminate it). For example
due to my adenomyosis I was continuously bleeding and had the coil
inserted during the op and haven't bled since!
Hope this helps
--
Lisa
At Tue, 7 Sep 2004, Sara' wrote:
>
>At Tue, 7 Sep 2004, Britty wrote:
>>Dear Britty,
>
>I read your post & just wanted to add in my two cents. I was worked up
>for adenomyosis before my last surgery due to my symptoms. I have endo.
>but the pain seemed to be different from what I usually experienced.I
>had an MRI, and they were able to see exactly what was going on - I had
>more endo. but no adenomyosis. My GYN didn't say anything about age
>playing a role per se, but he did say my having had a child made me
>suspect for it. Go figure?!?!
>Hope all turns out well. Sara'
>
>>Thank you for responding to my message, it was very helpful. My doctor
>>said the only way to diagnose adenomyosis is to have a hysterectomy? I
>>was like what???? It didn't make sense. With the endo. I was
>>considering it but the results seem to vary from person to person. Thank
>>you again for your advice. Britty
>>
>>At Mon, 6 Sep 2004, lisa wrote:
>>>
>>>Hi
>>>I have been diagnosed with endo and adenomyosis since I was 18. I am 21
>>>now. My sypmtoms include bad, bad, bad pelvic pain (mostly in lower
>>>region), constant bleeding, feeling of swelling in abdomen and extremely
>>>tender abdomen. This has caused me nothing but grief but I have yet to
>>>have a hyst to relieve me of it.
>>>Ask your doctor to give you a hysteroscopy and they should be able to
>>>let you know whether you have it.
>>>
>>>Hope this helps
>>>Lisa
>>>
>>>At Sun, 5 Sep 2004, Jennifer wrote:
>>>>
>>>>At Sun, 5 Sep 2004, Britty wrote:
>>>>>
>>>>>Hello,
>>>>>
>>>>>I was curious if anyone has adenomyosis and if so can you please reply
>>>>>with your symptoms and age? I have endo. and I am worried about having
>>>>>it my uterus. I have pain in my back and down my leg, nausea, vomiting,
>>>>>dull, stabbing, numb, pain in my pelvic area and dyspareania. Because
>>>>>of my age (27 yrs) my doctor doesn't believe I have it in my uterus. I'm
>>>>>often bedridden and I need some help...any advise would be great.
>>>>>Thanks! Britty
>>>>
>>>>I'm 23 and had endo in my uterus at 19. I had stage 4 and was forced to
>>>>have a hysterectomy at 21. It doesn't matter your age you can have it
>>>>anywhere. Iwent on Lupron for 6 months and then was able to get
>>>>pregnant. My endo was inactive for 14 months then came back with a
>>>>vengance. I had my hysteretomy when my son was 15 months old. However,
>>>>I still have alot of endo symtoms. You may want to get a second
>>>>opinion. Also they can see where your endo is at through a lap.Good
>>>>luck Best whishes!
>
>--
>Sara'Fleming
>
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