ENDO Messages for March, 2004: Endo, gallbladder, heavy bleeding and abnormal pap result

Endo, gallbladder, heavy bleeding and abnormal pap result

From: Anonymous (anonymous@obgyn.net)
Sat Mar 27 11:44:24 2004

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I am a mess! Last month, I got a terrible pain in my upper right abdomen similar to a gallbladder attack. I went to my GP and he sent me to the ER because he was certain it was my gallbladder. They did an ultrasound and bloodwork, and it wasn't my gallbladder, but the pain was so intense that when the dr. in the ER touched the area I couldn't help but cry. Then, they did chest xrays - still nothing wrong, so they sent me home. The pain got worse up til my period came, and then got better as my period went away. I had a lap last year for endo and sure enough, I have endo. I was put on Lupron for 6 months, but it wore off and did not help with the cramping or the bleeding. I am concerned that this pain is from endo spreading to the gallbladder? Is that possible? It's the only explanation for the pain that I can think of that wouldn't show up on the tests that they did in the ER.

I have had my period four times now after the Lupron and every month it gets heavier. The day after I was in teh ER for the gallbladder scare, I was going through 3-4 pads an hour, completely soaking through them. THat lasted two days. I was feeling dizzy, my arms and legs were going numb, and I felt really strange, like I was going to pass out. (This was on a weekend, and I didn't want to spend another night in the ER when I had been there 6 hours that Friday, just a day before.)

I called my ob/gyn that Monday, she was on vacation but the office staff insisted that with that much bleeding, I should be seen in the office. I got this other dr. who was really rude. I asked her about the bleeding, told her how it's getting heavier every month and if I should go to the ER for such bleeding. She told me that going to the ER would be pointless because I was "unwilling to take the Pill and if you won't take the Pill, then there's nothing anyone can do for you." The Pill makes me sick, it's right in my chart. I get migraines, dry heaves, vomiting, nausea, and stop peeing for hours. It's terrible. I have tried 10 different types and they all cause different unliveable side effects. I don't want my only choice to be being sick for one week vs. being sick every day.

So, I left there, feeling awful. Then, this past Thursday, my ob/gyn office calls me because I had seen my regular doctor about two weeks before the gallbladdr incident for my annual check. The pap smear came back ASCUS. I am really scared, since this corresponds to the heavier bleeding and weakness. They want to see me again in six months for another pap, but I do not want to wait that long. The ASCUS pap was negative for HPV, so it's not herpes. I am fearful of cervical dysplasia or precancer. Most of the women in my family have had early hysterectomies, endo, and precancerous cells. I am only 30, but I do not want kids, and have let the dr. know that numerous times. I cannot go back on Lupron because of bone loss to my spine after just 6 months on it and severe edema and weight gain that still has not come off.

Has anyone out there had an ASCUS pap with severe menstrual bleeding following Lupron treatment for endo? What happened? Also, does anyone out there know for sure about endo spreading to the gallbladder concurrent to Lupron treatment? Should I wait 6 months or should I hurry up and get this checked out further now? I am terrified. Personally, I think the bad pap is just another indication that I really should just end this battle and have a hysterectomy and be free of this pain and scary loss of blood once and for all. Like I said, I don't want kids, so fertility is not an issue for me.

Also, my quality of life stinks. I do not go out anymore, am really depressed, and I am frightened that some day, I will end up hemorraging to the point that they will have to admit me and do a hysterectomy anyway. I would rather have control over surgery and be able to plan it, rather than just passing out and being taken to the hospital in an ambulance. I absolutely live in fear that this is the future, because although I keep telling my dr. that it's just getting worse, it's like they won't help me until it becomes an emergency. I want to prevent that, and if it means hysterectomy, so be it. I have already given people at work emergency numbers for my family in case something happens to me at work. I hate living like this. I am also depressed because, on top of not feeling well, no diet or exercise plan has taken off the weight I gained on Lupron, I feel and look terrible, and I don't go out and do anything that used to interest me anymore because of it. I now have a closetful of clothes that I cannot wear that are really nice but don't fit and the rest of the clothes are baggy, ugly things that do fit. I can't find anything that I like that fits me. I feel like an old woman, and I am only 30. I don't date any more, and sex? Yeah, like THAT'S going to happen. I hate looking at my own body, why would I want anyone else to?

Any advice or personal experiences with any of this I would appreciate...Thank you all.

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