|
Re: endo stages?
From: anonymous (anonymous@obgyn.net)
Wed Mar 24 17:44:54 2004
There are only four stages of endo, not five and the only way you can be
staged is by the doctor who performed your surgery. Some doctors choose
not to stage the endo because there really is no reason to stage it. The
stages are based on a point system. The stage has little to do with the
amount of pain that you feel or your ability to have a child. Many
women with stage i endo have severe pain while many women with stage iv
endo have no pain. Many women with stage i endo cannot get pregnant
while many women with stage iv endo can. Basically, the deeper the endo
and the more widespread it is, the higher your stage. If your doctor
didn't tell you or your parents your stage, he may not have staged it.
You, or your parents since you are under 18, should be able to call your
doctor's office and find out.
At Wed, 24 Mar 2004, anonymous@obgyn.net wrote:
>
>Liza! Haha that's a great idea! I'm only 17 and have been through only
>one test where I had to drink and wait, but it was the worse medical
>experience of my life! I had a ultrasound a few months ago, before they
>decided to do a lap. See I have horrid over-active bladder problems and
>when I gotta go, I gotta go! I started bawling cuz I had to go so bad!
>Then when they were done the lady hurried and told me where the bathroom
>was, and I literally ran there! These men have invented some terribly
>tests for it, we need to take a stand! I would much rather have surgery
>than go through that again! And no I have'nt watched any good tv to the
>other girl who respnded, there is absolutely nothing on! And with the
>stage thing...I have no idea what I am, all I know is I over-heard my
>Dad talking to my Mom and he said he was looking up something online and
>said I proboably have stage 4 or 5! I didn't think I was that bad off,
>even though I do feel sicker by the day and all I have been doing all
>week, well mostly for the last few months, is laying in bed staring at
>the wall because of how crammy I feel. He could bw wrong, but it kinda
>freaked me out!
>
>At Wed, 24 Mar 2004, anonymous@obgyn.net wrote:
>>
>>At Wed, 24 Mar 2004, anonymous@obgyn.net wrote:
>>>
>>>quick question? i really have a million questions and probems right now,
>>>but hav been too sick to get on. right now i'm laying in bed with my
>>>laptop next to me typing one handed. i was just wondering how do i know
>>>what stage of endi i have? the doctor has never told me, and i won't be
>>>talking to him anytime soon cuz he doesn't seem to know much about endo
>>>and aint doing me any good! thanks!
>>
>>Hey,
>>I totally understand how you feel about how overwhelming our curiousity
>>can be about endo, and yet not getting answers. When I had my first lap
>>with my gyno, she told me after that I had endo and that I had no cysts,
>>that was originally on the MRI. That is all she told me. I didn't know
>>if she knew, and wasn't telling me (maybe not to scare me?) or if she
>>didn't know how to score it, and what she was doing. After a month more
>>with her, and being on lupron, I asked her more questions, which she
>>well avoided or misdirected. At that point I knew she had no idea what
>>she was doing. I found another doc, a Rep. endo. which then also
>>scheduled my for surgery. After the surgery, I sat with him, in his
>>office, and he explained EVERY point that contributes to the "level"
>>chart. The amount of points you have is measured on a scale that
>>determines your level. The points are varying in range depending on
>>what was found during that lap. If cysts were found, adhesions,
>>implants, scar tissue, if organs were adhered to each other, etc. With
>>this info, you are then scored. I know I had a large 4cm endometrioma
>>on my right ovary, adhesions, scare tissue throughout, and an adhered
>>ovary to my back. My doc scored me a 32 (out of 40), with above 38
>>being Level IV. So, I'm a level III. With the amount of complications,
>>and locations of the implants (the endo) is how it is ultimately scored.
>>I hope this helps, and I hope you'll be feeling better soon. I'm about
>>to leave now to go to my first Urogynecologist appt. Yeah! What fun
>>this will be! I have to drink all I can before going, too. Don't you
>>love that? I hate it when they make you drink all this water, and then
>>make you wait; be it an MRI, sono, whatever. One day, I WILL pee in the
>>waiting room. I SWEAR! Well, anyway, feel better soon!
>>
>>--
>>Liza
>>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)