ENDO Messages for March, 2004: Re: ADHESIONS

Re: ADHESIONS

From: amy (anonymous@obgyn.net)
Wed Mar 24 00:35:52 2004

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I completely understand the frustration you are experiencing. I am up right now at 1:30am waiting for my pain meds to kick in so i can go back to sleep. I have crohn's and endo and was told my adhesion was due to my crohn's causing my cecum to become inflamed and then then endo sticking it to my ovary. Who knows what is going on because it seems like every doctor has a different story as to why the adhesions are there to begin with. I just found this out after my 2nd lap a month ago. I was told i needed a general surgeon to separate my organs and that he could not do it. I know that is where my pain is coming from. It is the same specific spot the most of my pain has been coming from for years. It seems like the medical community would be able to help out more than they do. I think sometimes it is because it doesn't affect men so there just isn't the funding for the research that needs to be done to find a cure. Just hang in there! We all know how you feel and will continue to be there for you when you need to talk. I undertand your pain, I really do. Maybe look for an endo specialist in your area, that is why I have been trying to do. I hear that they actually do exist:) Take care, Amy

At Wed, 24 Mar 2004, Amber wrote: >
>At Tue, 29 Dec 1998, Toni wrote:
>>
>>I have been reading alot of posts about adhesions and see that alot of
>>us struggle to get help from doctors that they know it is not going to
>>help us, you get so tired of hearing there are no guarantees, and I
>>understand all of this, but how can they help someone with a bad heart,
>>or people who are really sick, but there is nothing or no one out there
>>that can help us. This is why I am getting so down, to undergo 2
>>laparotomies in 5 months and feel worse is enough to pull anyone down, I
>>was looking so forward to feeling good again, I have a sister with
>>crohns who does not understand that I am in pain all the time and she
>>has been through HELL for years, permanent colostomy done a year ago,
>>and she feels better than I do! I cannot explain this, but my dr told me
>>that any one who ha ssurgery has adheisons, but depending on where they
>>are and what they stick to the way I understand it, is where the pain is
>>from.
>>The last general surgeon I saw last week told me that adhesions DO NOT
>>cause pain, he is crazy, I see a gastro dr the very next day, and he
>>read my op report, and he said the gyn. had to operate, the bowels were
>>a MESS! I am so soick of all the drs sayiong something different, I know
>>that my gyn does not know what to do fo me anymore, but he understands
>>me, and what I am going through, 4 weeks ago, I begged him not to send
>>me to no more drs. I want him to take care of me, he said he would do
>>my next lap when I was ready, but I am fearful to do anymore surgery,
>>not right now, but I am tired of the pain, WHAT ARE WE TO DO!!???
>>
>> thanks for listening AGAIN!
>> Toni

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