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Re: What now? Lupron? Danazol? Another Surgery?
From: abby (anonymous@obgyn.net)
Tue Mar 23 07:29:49 2004
I recently tried Danazol (about a month ago) I only lasted two weeks on
it as I was silly enough to go out in the sun while on it and developed
a severe rash in the sun exposed areas. After only one day off of
Danazol I felt great, I didn't realise I felt so bad while I was on it
until I went off it. I was tired continually, headachy and just a
general feeling of unwell. My specialist recommended Depo but I've
heard some bad things about it so I'm taking Primolut tablets. After
only two weeks on them I no longer have any spotting (have been spotting
continually since a c-section (to remove massive ovarian cysts) in Nov
last year.
At Wed, 10 Mar 2004, Lilly wrote:
>
>I wouldn't go with Danzanol... i've read some of the side effects can
>be permenant such as having a new deeper voice, and Growing hair in male
>places such as facial hair... I'm on CBCP and they suck too, but
>something is better then nothing...
>
>Good luck to you
>Candace
>
>At Wed, 10 Mar 2004, Franny wrote:
>>
>>Hello All,
>>
>>I posted a couple of weeks ago about going back to the doctor, and I
>>recently did, and will see the doctor again in two weeks. After a lot
>>of discussion, it was their opinion that my next best option was either
>>Danazol, or Lupron, after all, what else do I have to lose? No mention
>>of another surgery.
>>
>>The prospect of either of those drugs terrifies me. I have been doing a
>>lot of research on both of drugs and found information that suggests
>>these are effective drugs, and other that have suggested that these are
>>drugs with undesirable side effects and are very hard on your body. If
>>it were up to me right now, I would opt out of using those drugs, I have
>>not found anything that convinces me that the benefits outweigh the side
>>effects and potential ineffectiveness. I would almost rather have
>>surgery again before I put that sort of drug into my body. But how do I
>>explain how freaked I am by these drugs and that I am really leaning
>>towards using them only as an absolute last resort?
>>
>>I am curious, if you have been on Lupron or Danazol, how did you feel?
>>Were they effective? Did your pain stop? Were the side-effects
>>tolerable? How soon, if at all, did symptoms come back?
>>
>>--
>>Franny
>>
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