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Re: I am so confused!
From: Annette (anonymous@obgyn.net)
Mon Mar 22 21:15:27 2004
You poor dear! I was going to say, "Don't do the Lupron!" but as I read
on, you had already elected for that treatment. I was on it for two
months but could not tolerate the hotflashes and mood swings (hello, I'm
a psychotherapist! Can't be crying and hotflashing during sessions!) so
I got off of it. I don't have an answer to your question. I think the
only answer is hysterectomy (that's what I'm looking at right now, but
putting it off until I can't stand the pain anymore), but that's not
even an answer because it comes back even after a hysterectomy in some
women. The pain is terrible, and I know pain killers are not the answer
for the long run, but at least your doctor will give them to you. I'm
lucky if I get Ibuprofen from my doctor. And that doesn't work. I've
just tried to tell myself that the pain is at least more tolerable than
the Lupron hell I lived with for two months. Some women are on it
longer and I don't know how they do it.
If you need someone to talk to, please email me at
cookiepuss66@sbcglobal.net. I'm a good listener and I need support too!
At Mon, 22 Mar 2004, Dene wrote:
>
>This is a long story so I'm going to try to make it as short as
>possible. I have been diagnosed with endo about 10 years ago and went
>from one doctor to another trying to aleviate the pain from my periods.
>Every doctor that I went to always wanted to put me on the pill and send
>me on my way so I gave up on the idea of a cure for endo and lived with
>the pain. Up until the last 2 months, I have dealt with painful
>periods, but lately I have been dealing with abdominal pain before,
>during and after my periods.
>
>I really thought it was something called IBS because I have been dealing
>with the endo for so long I figured I had it licked, but after seeing my
>general doctor and getting a colonoscopy, he said it probably had
>something to do with my endo and suggested I go see a OB GYN. Now I
>have avoided seeing an OB GYN for this many years for all of the run
>around that I have recieved so needless to say I was pretty reluctant to
>make an appointment with this doctor my general doctor suggested I see.
>I called and made an appointment with this female doctor (who I thought
>would better understand what a women goes through) and seen her. I
>explained my situation to her and she suggested I go on Lupron. I told
>her I wanted to look into it on the internet and she said I probably
>wouldn't like what I found but gave me that chance to do so. Even
>though I found issues with the Lupron I had my insurance company look
>into the pricing, and was taken back by the $587 deductible that I was
>required to pay before recieving this medication. For all of the horror
>stories that I have heard I told my doctor I really couldn't afford this
>medication. She said she had a friend in the pharmacy business and
>could probably get the medicine free of charge for me since my insurance
>wanted so much of a deductable. She told me it would take a few weeks
>to get the medicine so in the mean time I kept taking oxycontin for
>pain.
>
>While waiting for the answer on the Lupron I was rushed to the hospital
>doubled over with pain. They immediatly put me in the hospital and
>hooked up a morphine drip to my arm. I finally seen my doctors
>assistant who got my the Lupron from another hospital and got a 3 month
>injection and was released the next day. I was fine for 2 weeks and now
>I am in greater pain than I was in before I recieved the Lupron shot. I
>called my doctor on Friday and she said she was going out of town until
>the following week, if I continued to have pain go to the ER or call her
>assistant on Monday. Well I struggled all weekend in bed and got up to
>go see her assistant today. His reply was in the 15 years of being a
>doctor he has never seen anyone with endo in this much pain and that
>when my doctor returns she needs to do a Laproscopy? My question is
>there anyone out there that understands what women with endo is going
>through and why mask the problem with some drug that does not cure the
>problem but masks the problem? I am so tired of being doped up on pain
>medication, I can't keep going on like this. If anyone has any
>suggestions I would greatly appreciate your help!
>
>--
>Dene Lorenzen
>
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