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Re: Lap gave me answers but didn't take away any pain:(From: Annette (anonymous@obgyn.net)Sun Mar 21 02:10:10 2004
At Fri, 19 Mar 2004, Kelly wrote: > >At Wed, 17 Mar 2004, amy wrote: >> >>I have been suffering with horrible pain for over 7 years. My doctors >>have all written it off as cysts and said they were normal and a part of >>my life. My pain has been too bad to be normal so I finally pushed for >>a laparoscopy. I had my lap done Feb 18 and the results showed that I >>have stage 2 endo, polycystic ovaries and due to my crohn's disease >>(according to my dr.) my small intestine is stuck to my right ovary. The >>doctor told me he removed the endo and cysts but could not disconnect >>the tissue that was sticking my organs together for fear of perforating >>my bowel. He said that I would have to have a general surgeon take care >>of that. Well, I am 31 and trying to have my first baby with no success >>so far. Because of this, the doctor said my best course of action is to >>not have any treatment or further surgeries now and just try to get >>pregnant. Well, less than one month after my lap, all my pain has >>returned. I am so sad and depressed because I thought for once I might >>experience some relief, even if it was only for a couple of months. I >>can't imagine trying for a baby when sex is the last thing on my mind. >>My pain is so unbearable that I am hardly able to walk or stand at all- >>THIS IS NO WAY TO LIVE!!! I have had success with birth control pills in >>the past and have decided to forget having a baby (which is heart >>breaking in itself) and try to go back on b.c. pills after i get >>through this period. I don't understand why my pain is so bad. i have >>had to quit my job and drop out of life because of this. as i write >>this the tears are just pouring. somehow, i feel that some of you know >>how i feel and it makes me not feel so alone. thanks for listening and >>i hope for you pain free days ahead. >>thanks, >>amy > >I know how you feel, sweetie! I am 23 and had my foruth Lap two months >ago. Unfortunately, it didn't help and I am and have been in severe >pain for a long time. Nothing seems to be helping and my life has >diminished. I have een out of work for 5 months and I can hardly walk >or do anything for that matter. I have stage IV Endo and just got >married. The Dr continues to tell me to try to have a baby eventhough I >might not be able to conceive. The endo has eaten away at the ligaments >supporting my uterus and who knows if the uterus I have could even >support a fetus. I have thoughts about it long and hard andhave asked >for a hysterectomy. I have to wait two mmore months to see if the >Lupron will help but if it doesn't then I am opting for the surgery. I >know I am young but I am not living right now and I am emotionally and >physically exhausted fromt he last 9 years of suregeries, pills, pain, >shots, etc. I know what you are going through and if you need someone >to talk to I am here. I have been through all the treatment numerous of >times so let me know... I can totally relate to both of your stories. Although I am much older and waited for years to start a family, finding out I had endo at 36 years old really threw a wrench into getting pregnant with my one and only true love. I have had one lap and have stage IV endo. I had bilateral endometriomas (ovarian cysts) and one was ruptured. The surgeon had to take 2/3's of each ovary, which didn't leave me much to work with after surgery. And especially at my age, trying to get pregnant with 1/3 of each ovary was a major long shot. I went through surgical menopause, didn't have a cycle for five months, began having pain after the periods began again and was put on Lupron for two months. I could hardly tolerate the Lupron and had severe hotflashes, mood swings, migraine headaches and fatigue. It was horrible. I opted to stop taking the Lupron after two months of hell and have been feeling better since. It took a while to get the Lupron out of my system and I will never again go back on that hormone treatment! It was worse than the pain I experience with the endo. Currently, I'm in pain and take pain meds when I have to, but I remind myself everyday that the pain is better than the Lupron and all the side-effects that goes along with that horrible drug. I have also decided not to go through IVF or any other means of fertility treatments because of the health risks. I would rather be healthy than put myself at risk just to have a baby. I would much rather adopt a child than go through all of that. In fact, I have started eating a healthful diet and have begun working out again (I've lost 16 lbs.! yeah!), and I am feeling much better. I know I will have to have a hysterectomy in the near future, but I feel more at peace and more in control of my health than I was a year ago. I don't want this disease to control me anymore. If you feel like you need to talk, email me. I can totally relate!
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