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Re: Hysterectomy my only option left????
From: Amy (anonymous@obgyn.net)
Fri Mar 12 13:04:42 2004
I am pretty much at the same point. I have had multiple laps, done
lupron, continuous bc, etc, etc, etc. I have found the pain to not be
quite as bad on continuous birth control (as in it comes and goes
instead of being constant) but I am still finding the quality of my life
to pretty much be non-existent. Sex hurts, tired all the time,
constantly sick at my stomach, can't work out or I bleed, bleed and spot
if I sleep wrong, etc. Because I have tried everything else, my Doc has
said that I can try for a hysto and hope for the best. While hysto is
not a cure, I really don't know what else to do. I can either go for it
and hope for the best, or keep trying things to relieve the endo
temporarily. Right now, at my Doc's suggestion, I am attending
counseling to discuss the realities of having a hysto at 33 years old. I
have no kids, and my hubby and I really don't want any, so fertility is
not my issue, but hormones are. I would be having everything taken out,
so with no ovaries, I will have to take HRT to some extent. I'm very
scared of the long term effects of that, how it will make me feel,
effect my life, etc. And my biggest thing right now is what if I have
the hysto and nothing improves? Then I am totally out of options. While
a hysto is scary, it has always been my "light at the end of the
tunnel". So, I can relate to what you are saying. It is a hard place
to be in and every time I think I have made my decision, some new study
or fact makes me second guess. If you want to talk more about it, email
me at my work address (not the one listed on the forum because I haven't
been keeping up with my personal email). My work email is
ameyer@dbllaw.com. Maybe we can figure it out together!
Hugs!!!
Amy Meyer
At Fri, 12 Mar 2004, Northlights wrote:
>
>Hi all.
>I'm new here. I'm 33 yrs old, and have been suffering with some degree
>of pain for the past 10 years (at least). Finally, a year ago a gyn
>agreed to do a laparoscopy, and a vaginal ultrasound. Turns out I have
>stage IV endo and also adenomyosis.
>Had another lap done 2 weeks ago to try to cauterize and laser some of
>the endo to try to relieve some of this pain. Well, the doc called me
>that night to say there was very little he could do. My uterus is
>tilted backwards, and is now fused to my bowel and pelvic wall. He
>called it "frozen pelvis" and described it as looking as though someone
>had poured a pot of glue into my pelvic cavity. He went on to say that
>this would definitely explain why I'm in so much pain
>I used to have pain only during my period. Now, periods are
>excruciating (in bed for a day or two), and I have low back pain every
>single day. Some mornings it is difficult to get out of bed. I don't
>know what to do anymore. I can't take Lupron, as it's not covered by my
>insurance. That is only a temporary measure anyway. The doc doesn't
>want to give me any medication for pain, as "narcotics are addictive"
>I'll qualify that by saying I can take 2 tylenol 3's at a time, and it
>doesn't even take the edge off. I feel like crying right now.
>According to him, my only other option is a hysterectomy...which would
>be complicated by everything being stuck together. At this point my
>ovaries and tubes are ok. No endo there. This is good in that he could
>leave those in and I wouldn't have to take HRT. I'm way too young for
>that.
>I guess I'm just looking for support, or for any other treatments that
>we haven't thought of. I've done birth control pills, taken naproxen,
>ponstan, tylenol 3, celebrex, etc etc. I've done the lap. What else is
>there? Is there anyone else here who has gone through a hyst at this
>age? I'm freaking out here, but I am so tired of hurting all the time.
>thanks
>northlights
>
>--
>Hi there
>I just had a lap on March 23rd. I took 2 weeks off work, just to ensure that I was feeling up to snuff before I returned.
>
>My last lap I only took a week off, and then regretted it because I was so exhausted.
>
>Everyone is different, and it all depends on what they have to do in there, as to how long it takes you to feel better.
>
>Take care
>
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