ENDO Messages for March, 2004: Re: What now? Lupron? Danazol? Another Surgery?

Re: What now? Lupron? Danazol? Another Surgery?

From: Amanda (anonymous@obgyn.net)
Wed Mar 10 18:55:53 2004

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Reply: Franny: "Re: What now? Lupron? Danazol? Another Surgery?"

Hi Franny:

I was you 6 months ago. I opted for the lap first since I didn't want to try the drugs but not surprisingly it didn't help.

I am on Lupron now- week 6. Week 3 was tough for side effects, but now I feel better than I did before Lupron. When I wake up I feel like I am 25 not 85. The only side effect I have now is hot flashes and they are easy to handle once you get the hang of it. I have a friend who took it at age 22 after 7 lapraoscopies. She is in remission now and had absolutely no side effects. For some people it really is a good option.

A women in my support group has had good sucess with Danazol. My doctor told me that research has shown that the higher doses of Danazol used in the past aren't necessary and with the lower doses side effects are minimized. The pharmacist said that given the nature of the drug, it wouldn't survive on the market if more than 5% of people who took it grew facial hair etc. Another bonus of Danazol he said, is that it can be used long term unlike Lupron.

Good luck with your decision. Remember, its easy to be scared away by 1 person's experience...but sometimes forums are misrepresentative of real results. Afterall, people who aren't in pain don't go searching the internet for solutions.

-- Amanda

At Wed, 10 Mar 2004, Franny wrote: > >Hello All, > >I posted a couple of weeks ago about going back to the doctor, and I >recently did, and will see the doctor again in two weeks. After a lot >of discussion, it was their opinion that my next best option was either >Danazol, or Lupron, after all, what else do I have to lose? No mention >of another surgery. > >The prospect of either of those drugs terrifies me. I have been doing a >lot of research on both of drugs and found information that suggests >these are effective drugs, and other that have suggested that these are >drugs with undesirable side effects and are very hard on your body. If >it were up to me right now, I would opt out of using those drugs, I have >not found anything that convinces me that the benefits outweigh the side >effects and potential ineffectiveness. I would almost rather have >surgery again before I put that sort of drug into my body. But how do I >explain how freaked I am by these drugs and that I am really leaning >towards using them only as an absolute last resort? > >I am curious, if you have been on Lupron or Danazol, how did you feel? >Were they effective? Did your pain stop? Were the side-effects >tolerable? How soon, if at all, did symptoms come back? > >-- >Franny >

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