ENDO Messages for March, 2004: Re: Specialists in Toronto?

Re: Specialists in Toronto? - Any advice?

From: Amanda (anonymous@obgyn.net)
Mon Mar 8 15:48:06 2004

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At Mon, 8 Mar 2004, anonymous wrote: >
>Hello,
>
>I am new to this forum and am not even sure I have endo. After six
>months of excruciating left lower quadrant pain and being "diagnosed" by
>about six different doctors with everything from Irritable Bowel
>Syndrome (when I don't have symptoms of this) to "back pain which we all
>get when we're middle aged" (!!! I am 33!) from a doctor who did not
>even bother to examine me, I have had enough.
>
>Even a visit to Emerg (when the pain was so bad I could not stand up)
>resulted in them saying "oh you must have had some cysts which burst -
>here's some painkillers, go home, you'll be fine". I have had about
>twice my legal time off work since September and, after waiting 4 months
>for my GYN to be scheduled surgery time (!) I finally have a date for a
>lap at the end of March.
>
>In the meantime, my family doctor has been fairly supportive and sent me
>for constant ultrasounds, even a CT scan which were all "normal". Today
>she sent me for a pelvic x-ray, "in case it is something to do with the
>bones". Quite honestly, I am willing to try everything as I do not want
>to have a lap, only to be told there is no endo. I am on the pill and
>have been for about 5 years so am confused as to why there would even be
>endo symptoms in the first place.
>
>My symptoms are really only the pain and it is very unpredictable -
>sometimes hurts in morning, sometimes in afternoon, mostly not at night
>as I am horizontal (only position where is pretty much doesn't hurt).
>Exercise or abstaining from exercise doesn't seem to make it better or
>worse (I am a fairly active person - work out about 6x/week). The pain
>ranges on a scale fo 1-10 from about 3-4 most days to 8-10 on the really
>bad days.
>
>My GYN seems to think it's endo and apparently does not have the power
>to refer me to anyone else (ie: pain specialist) because my pain is not
>"acute" enough! I just want to know once and for all what it is so I can
>start managing it.
>
>Anyone know of any good endo specialists in or around Toronto. If it is
>anything like finding a good family doctor willing to accept new
>patients, I am sure the answer is probably no, but I still thought it
>would be worth a try. If it DOES turn out to be endo, I want to make
>sure I have someone treating me who knows what they're doing. I don't
>have much faith in the medical system right now.

--
Probablly one of the best in this area is Dr. G. Vilos.
He does take new referrals w/i a few months last I heard
but he's in London. He believes laser laparoscopy is the best and
the laser is only in London (so far as I know anyway).
In Toronto I have 2 recommendations but I can't say for sure whether
either is taking patients. Liza? Allen or Jody Shapero 593-4200. I am reading
a doctors writing and I am unsure about the names. The telephone number is
correct for sure. I hope this helps.
Amanda

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