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Anyone else using Mirena IUD for endo pain, and your experiences with ovarian cysts?From: Carrie (anonymous@obgyn.net)Sat Mar 6 11:22:30 2004
I am new to these boards and would like to post on my experience with endo. I was diagnosed 2 years ago after a laporoscopy and cautery. I had a "hunch" that it would be endometriosis as my mother has it, as does my auntie. I have suffered painful, heavy and irregular periods since I first began menstruating as a teen and also have cycles of diarrhea and constipation, though never been scoped or diagnosed with IBS. My experiences over the years with BC pills have been negative. Even on lower dose brands like Alesse, I would find myself becoming fat, weepy, neurotic and depressed, however I did find symptomatic relief from pain with the pill. After waiting for almost a year, I managed to get into an Endometriosis & Pelvic Pain Clinic, which I am very grateful for. I have found a very supportive physician who actually listens to me. While friends of mine who also suffer endo have had issues with the medical community not taking their pain seriously, I guess I have been lucky in my encounters with them. Maybe it's because I'm also an RN, I am able to have frank discussions with my care providers regarding my care. Anyway, because I am only at Stage 1-2 of endo, and cannot emotionally tolerate the pill, my specialist has laid out my medical options as being more surgery to look for adhesions/cysts, more NSAIDS (do they ever do a number on my tummy though), or the Mirena IUD. While IUDs are usually contraindicated for endometriosis because they tend to cause heavy bleeding and cramping, the Mirena will eventually and hopefully stop me from bleeding heavily, if at all. Since I have had it inserted though, I have had nothing but pain. Cramping pain, stabbing pain, pain that makes me empathize with men who get kicked in the testes. Emotionally, I am not noticing the birth control side effects since Mirena acts locally on the uterus and is not circulating in the blood stream in a very high quantity. However, being house bound in the fetal position, and missing many shifts of work due to the pain, is taking it's toll. Insertion was uncomfortable, because I have no children, my doc ended up having to anesthetize my cervix to get the IUD in, and I did feel mildly shaken up afterward. To get to my point though, I'm wondering if anyone else has had an experience like mine. The pain after insertion grew to be intolerable enough to send me to the clinic for tylenol 3, I began to think I had a possible cervical infection, but with the absence of fever, it wasnt likely. Turned out, I has been partially expelling my IUD. Ultrasound showed I had passed the body of the device about 2 cm down into my cervix, just short of it dangling into my vagina. My doctor, on my isistance put me on antibiotics prophelactically and pushed the IUD back into uterus. Infection risk was low, so I was game to try again. Turns out I now have a cyst growing on my right ovary (where a great deal of pain and pressure has been) and while it was only ovary sized in January, it appeared almost as large as my uterus in February on the ultrasound. We are assuming this is just a progesterone-cyst, a normal (but abnormally large and rapidly growing) thing and that it will be re-absorbed by my body. While the cervical pain is gone and the IUD seems to be doing its thing (though I have now been bleeding/heavily spotting for almost 2 1/2 months now), I am getting increasing discomfort in my right side, causing me to miss more work. I know this is a long post, but I am hoping that maybe one of the doctors in the forum may be able to give me any indication that this has happened to other women. How can you tell if one of these cysts is going away or if it has burst? Can they change from fluid filled to a chocolate cyst if there is internal bleeding? I get no relief from this discomfort with naproxyn, diclofenac or tylenol. While I am a medical proferssional myself, gynecology is not really my scope of practice. I have the basics, but really want to arm myself with knowledge about my disease. Anyone out there who can relate to this, please do! This disease, like any, is different for each individual, and I know I am using a relatively unconventional treatment method, so I'd just like some feedback. ~cheers~
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