Re: Introduction
From: anonymous@obgyn.net
Wed Dec 15 08:29:49 1999
Hi Cathy,
Welcome to the forum,you have definately come to the right place.
My first thought to you is have you thought about joining the Endo
Association,they have support group meetings for couples which might help
you.Their Web site is http://www.endometriosisassn.org You could also try
http://www.endometriosis.org there you will find alot of great information and some
have said that the Documentary Endometriosis-The Inside Story,has helped
alot of ladies and their husbands to really understand the disease and
everything that goes with it.You will find the documentary at
http://www.endometriosis.org/html/video.html if this doesn't work you will find it
at both the above sites as well.
Good Luck and again a warm welcome.
Best Wishes,
Belle.
>Fellow endo sisters,
>
>I joined the listserv today and I would like to introduce myself. My name
is
>Cathy Moak and I am 29 years old. I was first diagnosed with endo when I
was
>17, after two years of horrible pain. My case was considered severe. I had
>it on my ovaries, uterus, bowels, bladder, fallopian tubes, colon and
>kidneys. The only treatment available at the time was danazol. It was
>horrible. On top of going through menopause at 17, I fell into a deep
>depression. It was my senior year of high school and because of the
numerous
>surgeries I had to drop out. Susequently, about every two to three years I
>would have a laparascopy to remove the endo and the scar tissue from
>previous surgeries. In 1994 I went through the lupron injections. Though
the
>side effects were bad, it seemed to be very effective. I began having some
>pain about a year ago and my doctor put me on the bcp ortho-tricyclene. It
>has been the most effective treatment to date. For the first time in my
life
>I experienced a pain-free pelvic exam.
>
>I recently got married and I would like to have children (I am hoping that
>the last 14 years of suffering have not been in vain). One problem that I
am
>having a hard time dealing with is that my husband would like to wait 3 or
4
>years before having a child. I am worried that the longer I wait the lesser
>my chances. Any advice? have any of you had similar experiences? How do you
>cope? How do I explain endo to my husband?
>
>I would love to meet each of you, please introduce yourselves.
>
>Cathy
>
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