Re: Leah's Post-Op Visit
From: Robert (anonymous@obgyn.net)
Sat Nov 20 16:44:10 1999
Lila:
I know what you mean. The attending was the one that did the surgery but
she was also instructing at least two other doctors while doing my surgery.
Once I've relocated I'll make certain I don't have to deal with "students"
again. It makes getting care so much more difficult. It also makes it so
much longer to have anything done. Even simple blood tests take longer as
there is always someone in training. And you can't even say NO to a student
blood drawer. I can't tell you how many problems I've had with that as my
veins just love collapsing anyway. Hope your weekend has been a very nice
one so far. Take care--love to you,
Leah S.
bobsmountain@compaq.net
-----Original Message-----
From: Lila <anonymous@obgyn.net>
To: Multiple recipients of list ENDO <anonymous@obgyn.net>
Date: Saturday, November 20, 1999 5:49 AM
Subject: Re: Leah's Post-Op Visit
>Leah,
>
>>From my experiences in the past with "doctor's in training" I have not
>been very impressed. Eventhough they should be the ones with the most
>up-to-date knowledge on the diseases. In fact for my last lap, my doc
>stated point blank that he stopped using the local "training" hospital
>because he ended up spending so much time training the staff/residents
>to do a surgery that he could not spend sufficient time treating his
>patients. I appreciated his candor and had a great experience with this
>last lap. I think too sometime the "doctor's in training" are learning
>so much that they can't hold on to all the information they need to
>treat patients. And their fear of forgetting something causes them to
>lose sight of the patient. I am going to ask my doc for copies of my
>reports, just so I can see exactly what was done. It might be helpful.
>Hope you have a wonderful day.
>
>Wishing you wings for your hopes and dreams,
>Lila in Milwaukee, WI
>
>At Fri, 19 Nov 1999, Robert wrote:
>>
>>Lila:
>>I truly wish they required obgyn's to go to yearly or every other year
>>training on endo and how to treat the endo patient. You'd think I 'd have
a
>>better doctor than what I had as Stanford is a teaching hospital and the
>>attending's are instructing residents and medical students. Go figure--my
>>doctor is an attending as attending's are the only ones allowed to perform
>>surgery and yet she has a bedside manner of a resident. Her resident
>>treated me better than she did. Since I will be ordering up a copy of my
>>hospital records and all clinic records so I can take them with me when we
>>move on I'll be certain and make a second set for my files. At least once
I
>>get my hands on the operative I can see what was done. I think my doc
sees
>>way too many patients and just can't keep the patients straight in her
mind.
>>Hope you had a wonderful day and have a relaxing weekend!! Take care,
>>Leah S.
>>bobsmountain@compaq.net
>>
>>-----Original Message-----
>>From: anonymous@obgyn.net <anonymous@obgyn.net>
>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>Date: Friday, November 19, 1999 8:06 AM
>>Subject: Re: Leah's Post-Op Visit
>>
>>>Leah,
>>>
>>>Time to send another doc to sensitivity training. Obviously compassion
and
>>>healing are not her goal in medicine. Too bad she can't keep her story
>>>straight. How can you make an informed decision about anything if you
don't
>>>know what is really going on. I hope you have better luck with your next
>>>doc.
>>>
>>>Have a great day, chat with you later.
>>>
>>>Wishing you wings for your hopes and dreams,
>>>Lila in Milwaukee, WI
>>>
>>>-----Original Message-----
>>>From: Robert Simpson [mailto:anonymous@obgyn.net
>>>Sent: Thursday, November 18, 1999 7:33 PM
>>>To: Multiple recipients of list ENDO
>>>Subject: Re: Leah's Post-Op Visit
>>>
>>>Lila:
>>>Thanks for listening to my message and thanks for your reply. I'm not
>>upset
>>>that the pathology report came back endo free. I am upset by her words
and
>>>her tone. I hope to one day be able to find a new doc that will take all
>>of
>>>this seriously. The doc yesterday said there were only filmy adhesions
but
>>>the operative report indicated there were both dense and filmy. She said
>>>she cut and removed them but the operative report only says they were
cut.
>>>What am I to believe? There are just too many discrepancies. In a way I
>>>think she went into the surgery with a poor attitude and that she wants
me
>>>to go to the pain clinic as a way of continuing to "support" the Stanford
>>>medical establishment. (Stanford has been loosing money ever since a
>>merger
>>>that happened a little over a year ago.) Oh well, hopefully I can locate
a
>>>new endo friendly gyn once my husband and I have relocated. (My doctor
>>>didn't even think that adhesions could cause pain--what a bunch of
>>>nonsense). Take care and thanks once again for allowing me to vent.
>>>Leah S.
>>>bobsmountain@compaq.net
>>>
>>>-----Original Message-----
>>>From: anonymous@obgyn.net <anonymous@obgyn.net>
>>>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>>>Date: Thursday, November 18, 1999 11:50 AM
>>>Subject: RE: Leah's Post-Op Visit
>>>
>>>>Leah,
>>>>
>>>>You have every right to vent, that's what were here for . . .to support
>>>our
>>>>sisters who need a shoulder. To be honest with you, it isn't my endo
that
>>>>causes me a lot of pain, its the adhesions that hurt me the most. I
have
>>>>mild to moderate endo, but it is only visible when you look under the
>>>>uterous (per my doctor). My last surgery lasted 4 hours and most of it
>>was
>>>>cleaning out the adhesions that had formed since the prior lap, 8 years
>>>>earlier. Compared to the doctor's description of the location of the
endo
>>>>and the adhesions, and the location of my pain, we have concluded that
its
>>>>the adhesions that cause me the most pain. I hope that you really are
>>endo
>>>>free. Honestly, I feel that your doctor is out of line by stating that
>>>your
>>>>pain is strictly psychological. I may not know everything about you,
but
>>>>what I know so far, you don't strike me as the type. Just know that
I'm
>>>>rooting for you and hope you are having a good day.
>>>>
>>>>Wishing you wings for your hopes and dreams,
>>>>Lila in Milwaukee, WI
>>>>
>>>>-----Original Message-----
>>>>From: Robert Simpson [mailto:anonymous@obgyn.net
>>>>Sent: Wednesday, November 17, 1999 11:15 PM
>>>>To: Multiple recipients of list ENDO
>>>>Subject: Leah's Post-Op Visit
>>>>
>>>>Hey Ladies:
>>>>Went to my post-op visit this morning. I went in armed with a bunch of
>>>>questions. The doctors bedside manner hadn't truly improved. She led
me
>>>to
>>>>believe that all she found was a healthy pelvis. She saw only filmy
>>>>adhesions (though her chief resident, who was also at the surgery
claimed
>>>>there were dense adhesions, the operative report even indicated dense
>>>>adhesions) and one area that looked like endo on the utero (something)
>>>>ligament. The pathology results came back that there was NO endo just
>>>>adhesions. She said now that I knew there was no endo that my "mind"
>>>should
>>>>be relieved and the pain should now be able to leave as it was
>>>>psychologically based. What BS!!! Anyway, she said since there was no
>>>>confirmed pathology of active endo that I should go back on a very low
>>dose
>>>>of estrogen (Premarin .3) and that vaginal estrogen would reverse the
>>>>vaginal atrophy. I'm concerned about the estrogen but she's more
>>concerned
>>>>about my bone lose. So, I'll start back on the estrogen tomorrow and
hope
>>>>for the best. I'm still very convinced that there is still endo in the
>>>>pelvis somewhere. I just don't think she saw it. I'm still in pain and
>>if
>>>>there isn't endo I shouldn't be feeling this pain. My pain is very
great
>>>>with any and all bowel movements. The gastro doc said when she did the
>>>>colonoscopy that there was nothing wrong but that she knew I was dealing
>>>>with lots of adhesions. So who's right? Since I'm moving to a city
about
>>>>200 miles away I'll be forced to locate new doctors. Guess I'll need to
>>>>find an endo expert and allow that person to do another surgery a year
>>from
>>>>now (I just can't bear thinking about another surgery so close to this
>>>one).
>>>>I'm very frustrated. What I heard the doctor saying was the pain was
all
>>>in
>>>>my head and to get over it now that I know the pathology reports don't
>>show
>>>>endo. I can't wait for my primary care doctor to get back from
>>sabbatical.
>>>>I've always valued his opinion and definitely want to run all this by
him.
>>>>Hope all of you are doing well. Sorry to vent--just very frustrated.
>>Take
>>>>care--love to you all,
>>>>Leah S.
>>>>bobsmountain@compaq.net <mailto:bobsmountain@compaq.net>
>>>>P.S. I was able to go almost 23 hours without pain meds. Had no
choice,
>>>>was at the doctors when the pain hit and I didn't have any meds on me.
>>>>Could have truly used them at 19 hours. Oh well, I can only hope this
>>>>continues to be a good sign.
>>>>
>