|
Re: 17 years and I'm still fighting, Isn't there something new?
From: Deniece (anonymous@obgyn.net)
Wed Sep 22 21:21:27 1999
Lisa,
Thanks for your reply. Actually they have never done a lap on me at
all. They opened me wide up and cleaned the mess out last time (17
years ago). Since then they just do ultrasounds and figure that it's
back and drug me for a while and let it go. A year later we do it all
again. Fun Huh? I did see my GP today and he got a copy of my full
ultrasound (he ordered an abdominal and my GYN ordered a pelvic, he got
copies of both) He was was very helpful and explained things quite
clearly to me and also sent me to a new GYN and said he would send me to
the University if I didn't get satisfaction from this new Doctor. He
said that the ultrasound showed a cyst on both ovaries both about 2" in
size, and aI fibroid on my uterus. He needs to take my Gallbladder out
but wants to wait until this new GYN sees me. Then he wants to try to
double up the sugeries. He would like to see them go in and clean it
out but since I'm not planning on getting pregnant anytime soon he's
afraid of scar tissue forming making it more difficult when I do.
I worry that all my other doctors just didn't want to be bothered with
it since they haven't ever tried anything but drugs and now he just
wants to take everything completely out. I told my GP I just want to
buy me at least 4 more years. After I'm 40 I'll learn to except not
getting married and having a family. Right now I'm not willing to give
up hope.
At Wed, 22 Sep 1999, anonymous@obgyn.net wrote:
>
>Deniece,
>This is kinda late...sorry. Welcome to the group. Has your doc mentioned
>another lap? A hyst is a little drastic if you haven't had a lap, and it's
>been four years so you don't know what all is going in there. I hope you and
>your doc can come to a decision on this and get you pain free. Best wishes.
>Lisa B.
><<
> I'm 36 year old and I'm still fighting Endo. I had major surgery at 19,
> it was so bad that they thought it might be cancer and send me to a
> cancer specialist at UCLA. They went in and removed two cysts on my
> ovaries one the size of a grapefruit and the other an orange, that ended
> up being endo. Since then I've been on birth control (numerous times,
> doesn't work!), Danocrine about 4 times and Syneral once. The Danocrine
> worked well but the endo always returned within a year. Syneral was ok,
> It lasted a little longer. I went into a rebellion and decided not to
> go back to the doctor for 4 years. I don't like those exams anymore
> than the next person and felt I had more than my fair share. Finally,
> things are getting so bad again and I went back, the ultrasound showed
> that it's back, of course (I could have told him that), and now my
> doctor wants to do a Hysterectomy. I'm single and not ready to give
> everything up. From what I can tell from research, that this isn't
> necessarily a good option anyway. Perhaps an easy way out for an
> inexperienced doctor? I asked about other medications and he suggested
> Lupron. That sounds very scary to me too. I have a family history of
> Osteoperosis (sp) my mother is disabled from it and I'm struggling with
> bone spurs and other fun stuff already myself. I also have a long
> family history of cancer. I worry that I've already messed up my long
> term health with the drugs I've taken. I could probably go another year
> or so before the pain gets disabling again but I don't want to get to
> that point. Isn't there anything new? Something else I can try that
> will buy me a few more years fairly pain free? I'm getting very
> frustrated like everyone else.
>
> --
> -Deniece
> >>
--
-Deniece
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)