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17 years and I'm still fighting, Isn't there something new?From: Deniece (anonymous@obgyn.net)Mon Sep 20 22:53:46 1999
I'm 36 year old and I'm still fighting Endo. I had major surgery at 19, it was so bad that they thought it might be cancer and send me to a cancer specialist at UCLA. They went in and removed two cysts on my ovaries one the size of a grapefruit and the other an orange, that ended up being endo. Since then I've been on birth control (numerous times, doesn't work!), Danocrine about 4 times and Syneral once. The Danocrine worked well but the endo always returned within a year. Syneral was ok, It lasted a little longer. I went into a rebellion and decided not to go back to the doctor for 4 years. I don't like those exams anymore than the next person and felt I had more than my fair share. Finally, things are getting so bad again and I went back, the ultrasound showed that it's back, of course (I could have told him that), and now my doctor wants to do a Hysterectomy. I'm single and not ready to give everything up. From what I can tell from research, that this isn't necessarily a good option anyway. Perhaps an easy way out for an inexperienced doctor? I asked about other medications and he suggested Lupron. That sounds very scary to me too. I have a family history of Osteoperosis (sp) my mother is disabled from it and I'm struggling with bone spurs and other fun stuff already myself. I also have a long family history of cancer. I worry that I've already messed up my long term health with the drugs I've taken. I could probably go another year or so before the pain gets disabling again but I don't want to get to that point. Isn't there anything new? Something else I can try that will buy me a few more years fairly pain free? I'm getting very frustrated like everyone else.
-- -Deniece
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