ENDO Messages for September, 1999: Re: I am back after Surgery/Me too Endo Cysts

Re: I am back after Surgery/Me too Endo Cysts

From: Annette (anonymous@obgyn.net)
Mon Sep 20 01:24:26 1999

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Hi Anissa & Lisa B

I'm not long out of surgery from endometrioma cysts on ovaries. One was 13cm big!! more that a gratefruit, the other about 8cm. I had a laparotomy large incision rather that the laparoscopy little incisions. I was so scared I was going to lose both my ovaries and perhapsy have a hysto but as it turned out the doctors were able to remove the cysts and everything is still in tact. I have adhesions and scarring on outside of my uterus, and I'm worried about reoccurrence. Strangely I haven't had the pain that everyone is talking about. Going for surgery and coming out with drips, and morphine and catherter etc, that was some experience - for me - only been in hospital to have my son 11 years ago! Not true - I had my lower leg veins stripped about 5 years ago - but didn't have the morphine etc.

I just checked out Kristy's home page and was most impressed by the lovely butterflies and the details of her story. Poor Kristy now has vulva pain - I can't imagine. I know how thrush can make you itchy and the vulva swells, but pain there must be awful.

I can't believe the amount of messages - 256 today. Must scroll and delete. Subject headings most important.

Bye for now - wishing us all pain free lives. Regards, Annette Katona

>From: anonymous@obgyn.net
>Reply-To: anonymous@obgyn.net
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Subject: Re: I am back after Surgery
>Date: Mon, 20 Sep 1999 00:01:55 -0500
>
>Hi Anissa,
>I'm so sorry your news wasn't good. I did want to tell you that I had a
>similar experience during my lap last month. I had incredible pain in the
>right side for some time, so I was very surprised to learn that the left
>ovary was much worse. I did have an endometrioma on both, but the left was
>larger. Also, the left ovary had to be freed up by dissection. I didn't
>have
>left side pain either. You have lots to digest, but please get lots of rest
>so you heal well, and let us know what you find out on the 28th.
>Lisa B.
>
><< Hello Ladies:
>
> Well, I am feeling better after my Lap on Friday. Unfortunately it was
>not
> the best of news. All this time I have been suffering from really bad
>pain
> on the right hand side. It seems as the pain was deferred (?). After
>getting
> inside I have Stage IV endo covering my left hand side. The pictures
>that
>he
> took were not pretty at all. The upper half of my ovary is covered as
>well
> as huge adhesions on the ligament. I am not sure how much he was able to
> burn out, but after talking to a surgical assistant friend of mine, he
>did
> not think that they would be able to safely burn it all. I will find out
> more when I see him on the 28th. He did mention to me as I was coming
>out
>of
> the anesthesia that he wants to try another round of Lupron.
>
> Please keep me in your thoughts, I was not expecting such bad news, but
>now
> that I know what I am dealing with my attitude has improved considerably.
>
> I would love to hear from anyone who has had any similar experiences.
>Your
> all in my thoughts....
>
> Anissa
> >>
>

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