Re: Scotland (to Debbie)
From: Kay (anonymous@obgyn.net)
Wed Sep 15 00:58:12 1999
At Tue, 14 Sep 1999, anonymous@obgyn.net wrote:
>
Hi Debbie, I hope everything goes well for you on Tuesday. The health
service in this country is a joke at times. Heres a scary little story
for you. A good friend of mine is currently having a lot of problems
with pelvic pain as well and is under the same gynae clinic as me, at
the same hospital. She went for her last appointment and they asked her
how she was getting along with the treatment they had prescribed her.
She asked them what they were talking about. Turns out that her last
four smear test results have come back abnormal, and they were supposed
to have started her on treatment at her last appointment. It was in her
notes that they HAD started her on treatment. They hadn't even told her
that she'd ever had an abnormal smear test, let alone put her on any
treatment for it. Needless to say, she's not a happy girl. And she's
still being kept waiting for appointments!! I've given her the name of
the doctor in Livingston and also the name of the doctor you gave me
yesterday, so if she doesnt get any joy at her next appointment, shes
going to change. Hope everything is good with you, talk to you soon.
Let me know what happens on Tuesday, okay?
love
--
Kay
>Kay you are so right, I was on the phone all day trying to get an appointment
>with me GP before the one appointed (next Tuesday) unfortunately it was the
>receptionist that got my attitude and not the doc. Poor woman
>Take care of you
>Debbie UK Glasgow
>
>Kay wrote:
>
>> At Sun, 12 Sep 1999, Helen wrote:
>> >
>> Hi Helen,
>>
>> I'm in Fife, just across the Forth Road Bridge. I've only been to the
>> one hospital and that was one in Dunfermline. They've got a bad
>> reputation for just about everything they do. After the lap on friday,
>> my gyn told me to go back to my GP and get my kidneys tested and get
>> checked for (surprise surprise) IBS. I've decided to go see him on
>> Tuesday and agree to be tested for the above (even though I know there
>> is nothing wrong with my kidneys!!) and I'm going to tell him I want a
>> second opinion at an Edinburgh hospital. I'm going to write to the Endo
>> Assn and find out from them if they know of any gyns in Edinburgh that
>> have a good rep with Endo, and if they have, I'm going to tell my GP I
>> want referred to them. In fact, he's going to be so sick of me going to
>> see him, I think he'll probably refer me to Australia if I ask him, lol.
>> Have you contacted the Endo Assn? There is bound to be people in Glasgow
>> that you could go see. Mind you, this is Scotland, lol, so maybe not. I
>> really hope you get some results on Tuesday. Lol, some thing tells me
>> Tuesday is not going to be a good day for doctors in Scotland. By the
>> way, at the moment I'm taking a combination of Advil and Paracetamol and
>> no, they dont really work. The doc had me on co-dydramol for a while,
>> but they just knocked me out, so I cant really help with pain meds I'm
>> afraid. Write back or e-mail me when you can, it'll be great having a
>> contact so close to home. Lol, we can plot our revenge against the NHS.
>> Take care for now and talk to you soon,
>>
>> love
>>
>> Kay
>>
>> >Hi Kay
>> >
>> >I wish I could say im surprised your in Scotland but if you find it hard
>> >being diagnosed with endo chances are you live in Scotland. I stay in a
>> >village beside East Kilbride. I have now been to 4 different hospitals in
>> >the area and also to a private one. I have been to 2 pain clinics as well.
>> >I am sure the only reason I managed this is that I permanently visit my
>> >Doctor who is probably sick and tired of me so they refer me to someone
>> >else. Each time I see a new one we go through the same old thing of taking
>> >the history, Internal then onto emotional issue ie Do I have vaginismus to
>> >which I answer that I do like sex but cant do it as it is too sore. I
>> >wonder if they actually get taught about Endo or if they just get told about
>> >vaginismus.
>> >What painkillers are you on and do they help?
>> >Write to me soon
>> >Helen
>> >> -----Original Message-----
>> >> From: endo@obgyn.net [mailto:endo@obgyn.net]On Behalf Of Kay
>> >> Sent: 12 September 1999 07:33
>> >> To: Multiple recipients of list ENDO
>> >> Subject: To Helen
>> >>
>> >> At Sun, 12 Sep 1999, Norrie wrote:
>> >> >
>> >> Dear Helen,
>> >>
>> >> it is so frustrating!! You kind of wish you could be awake at the time
>> >> so you could see what they're seeing. I really hope you get another lap
>> >> and that this one shows up the problem. Whereabouts in Scotland are
>> >> you?? I'm in Scotland too, on the east coast near Edinburgh. Lol, watch
>> >> this, we probably have the same doctor. How did you manage to get the
>> >> referral to the other doctors? The three main hospitals in my area are
>> >> all covered by the doc that did my lap on Friday. I don't really know
>> >> the proceedures and stuff about being seen outwith the area. Good luck
>> >> on Tuesday, I'll be thinking about you. Please let us know what
>> >> happens. Take care,
>> >>
>> >> love
>> >>
>> >> Kay
>> >>
>> >> >Hi Kay
>> >> >
>> >> >I am in the same boat as you. I have had 2 laps and no endo to
>> >> be seen. I
>> >> >have all the signs and believe that i do have it but they can
>> >> not find it.
>> >> >I have been to numerous doctors and had so many internals that i
>> >> think every
>> >> >doctor in Scotland knows me intimately. I have another appointment with
>> >> >another doctor on Tues when I hope he will agree to another lap and
>> >> >hopefully find it.
>> >> >Wish you good luck
>> >> >
>> >> >Helen
>> >> >
>> >> >> -----Original Message-----
>> >> >> From: endo@obgyn.net [mailto:endo@obgyn.net]On Behalf Of
>> >> >> LJBrueggeman@MBF-LAW.com
>> >> >> Sent: 10 September 1999 19:23
>> >> >> To: Multiple recipients of list ENDO
>> >> >> Subject: RE: Laparoscopy Done - And Got No Answers
>> >> >>
>> >> >> Kay,
>> >> >>
>> >> >> I was told the same thing 8 years ago after a lap, by a doctor
>> >> >> who insisted
>> >> >> that it was all in my head. I now believe that I had Endo then,
>> >> >> and he just
>> >> >> didn't know what to look for. Endo come in many different
>> >> >> colors, including
>> >> >> clear.
>> >> >>
>> >> >> Do what I failed to do then, get a second opinion. Doctors
>> >> are only human
>> >> >> and can make mistakes. If you don't agree with your doctor,
>> >> for your own
>> >> >> peace of mind you have to keep trying.
>> >> >>
>> >> >> At one point, I too was told that I probably have IBS, but diarrhea is
>> >> >> definitely not a problem for me, usually quite the opposite.
>> >> >>
>> >> >> Hope this helps.
>> >> >>
>> >> >> Lila in WI
>> >> >>
>> >> >> -----Original Message-----
>> >> >> From: creid@creid.screaming.net
>> >> >> [mailto:creid@creid.screaming.net]
>> >> >> Sent: Friday, September 10, 1999 12:25 PM
>> >> >> To: Multiple recipients of list ENDO
>> >> >> Subject: Laparoscopy Done - And Got
>> >> >> No Answers
>> >> >>
>> >> >> Hi all, I'm really angry right now. I just
>> >> >> got home from hospital after
>> >> >> having my lap done. She said that she
>> >> >> couldnt see any endo or adhesions
>> >> >> and that everything looks normal and
>> >> >> healthy. I needed that answer like
>> >> >> I needed a smack in the face. She told me
>> >> >> she was surprised because she
>> >> >> was so sure i had it, i displayed all the
>> >> >> symptoms. All I know is, I'm
>> >> >> in a lot of pain, am constantly tired and
>> >> >> now shes told me she can see
>> >> >> nothing wrong. She told me to go back to my
>> >> >> GP, I wouldnt need a gynae
>> >> >> follow-up appointment, and that she thought
>> >> >> I probably had Irritable
>> >> >> Bowel. How can you blame Irritable Bowel
>> >> >> when someone doesnt have
>> >> >> diorreah and the pain is mainly in the back
>> >> >> now? Sorry for venting
>> >> >> without warning, I really got to go get some
>> >> >> rest. Talk to you all soon
>> >> >> i hope,
>> >> >>
>> >> >> love
>> >> >>
>> >> >> Kay
>> >> >>
>> >>
>>
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