ENDO Messages for July, 1999: Re: Should I get a 2nd opinion?

Re: Should I get a 2nd opinion?

From: Allan (anonymous@obgyn.net)
Sat Jul 31 18:26:17 1999

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Next message: Allan: "Re: Endo - Elaine"
Previous message: lisa: "ob/gyn's"
Maybe in reply to: Misty: "Should I get a 2nd opinion?"

I'm another one in the "not being helped by lupron boat". At last appt on July 8th, I agreed reluctanlty to have the fourth shot. Having lots of side effects but no good effects. My reg gynie off on mat leave; both her and the replacement have told me the lupron is the best thing - but its not helping, and I'm not having any more shots. Obgyn said maybe if the 4th shot didn't help we should try danocrine, depo, another lap... I don't like the sound of danocrine, and struggle with being a guinea pig for longer. I'm having constant pain, and don't want to continue to live like this - no, I don't mean that I'm suicidal, just that I am sooooo fed up! When I talked to gyn last appt re: hyst she said she doesn't want to do it yet cause its only the second time she'd seen me. Well, Thursday will be the third, and I might not be very pleasant - especially cause I called five times this week, once got a real body, practically begging for pain meds, and begged to at least be called back if it was only to tell me that the doc wouldn't call a prescription in to the drugstore - and, guess what, didn't happen. I was sooo mad - how do you tell someone, no, you can't have a hyst, and at the same time, not give them more meds to help manage the pain, you know what I mean?!?! Grrrrrrr. Anyways, sorry I babbled so much. Just wanted to let you know you have lots of company in the lupron boat!! :) take care and hope everyone is having a painfree weekend. luv, Amy

Elaine Nelson wrote: >
> Misty, Oklahoma
>
> You and I seem to be in the same situation. I am between my 3rd and 4th shot
> of lupron and have had on real pain relief. My dr keeps telling "this will
> work for you". I have had a lot of bad side effects too. Ask your dr about
> trying add back therapy (taking a small dose of estrogen to help with side
> effects). It has really helped me. Sorry I can't give you any more advice on
> what to do because I am not sure what to do myself. I just thought you might
> like to know you are not the only person in this boat.
>
> Pain free wishes,
> Elaine (NY)
>
> ----Original Message Follows----
> From: billnmisty@hotmail.com (Misty)
> Reply-To: endo@obgyn.net
> To: Multiple recipients of list ENDO <endo@talk.obgyn.net>
> Subject: Should I get a 2nd opinion?
> Date: Sat, 24 Jul 1999 19:24:00 -0500
>
> Hi
> I am 21. I found out I have endo 11-98. This is my 2nd time to be on
> Lupron. The 1st I was only on it for 3 months. My 3rd shot is coming
> up soon(7-28). The side effects are unbearable! Forget about the hot
> flashes, I can deal with those. I am still having pain, unbelievable
> pain, my doctor just tells me to "try this drug it will help" but it
> doesn't. She is a good doctor but, I don't think she is helping me at
> all. I've thought about a 2nd opinion but isn't the only way you can
> diagnos endo is thru laproscopy? Would I have to go thru ANOTHER one of
> those? Can anyone suggest a doctor in Oklahoma?
> Thanks for your help. Praying for you. Misty, Oklahoma
>
> _______________________________________________________________
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Next message: Allan: "Re: Endo - Elaine"
Previous message: lisa: "ob/gyn's"
Maybe in reply to: Misty: "Should I get a 2nd opinion?"

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