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Re: Jasmin
From: Allan (anonymous@obgyn.net)
Mon Jul 26 12:08:34 1999
Dear Jasmin
I'm sorry its taken me soooo long to respond. I'm WAY behind in mail,
was out of town for several days, had company, been down in the dumps,
etc etc etc.
I hope things are going better for you; have your figured out what you
want to do ? This endo stuff is just sooo miserable. I really feel for
you; you've had to deal with so much.
As for your questions; I don't know how long I've had endo. but I've had
very painful and heavy periods for at least ten years. Went through
three docs - two males who were completely unsympathetic and sloughed
off my concerns, and a female who gave me anaprox which just made me
sick. Finally last year got another female (first one moved) and she
send me to an obgyn; lap in Feb confirmed endo.... have tried other
antiinflammatories without any help, tylenol 3 and percacet (take the
edge off but make me dopey). Had four shots of lupron but am NOT having
anymore. It has not helped with the pain at all, and all I've gotten
from it are all the negative side effects. Not sure what my next step
is; when I saw the obgyn last month she said she didn't want to do a
hyst yet and wanted to try danazol or depo. I don't think I want to do
the danazol; already get enough hair on my chin I don't need more!!! :)
I'm having a hard time convincing myself to continue to be a guinea pig,
especially since both obgyn's (first one is on mat leave) kept telling
me the lupron is the best thing for endo and adeno, when I kept telling
them that it wasn't working; I'm having a hard time convincing myself to
try something that they felt wouldn't be as effective, know what I mean?
Plus, I seem to always get the bad side effects with everything. I just
am sooo tired of being in pain all the time!!!! I'm sure you can relate
to that!!!!!!! :)
As for homeopathic approaches, my family doc does not support that - she
says there is so much unknown about how our bodies interact with them;
and, like I said, I react to soo much she's worried about that. I have
a lot of allergies, had an allergic reaction to toradol, allergic to
tonnes of foods and environmental stuff, etc.
Sooooo, most of me is ready for a hysterectomy, cause it doesn't seem
there are any really good options. I see the obgyn again next week, so
I'll update you then.
How about you? How is your body behaving? What do you see doing next?
I'm sorry this is so long - blame it on pain meds :)
luv and painfree wishes, Amy
Jasmin Blake wrote:
>
> Thanks Amy
>
> My birthday was o.k.
>
> I'm ashamed to say that when i was first diagnosed with Endo i did not pay
> much attention I guess I was just hoping it would go away.
>
> My first laparprocospy showed I had endo on the right side and I had one
> cyst on my left side approx the size of a grapefruit and on my right side I
> had the same thing except it was cluster shaped around my ovary ( like
> grapes). then I had a laparompty (sp. error).
>
> Now my cyst are smaller but the doctor advises I should do another
> Laparcrospy to clear out the amaller cysts and see whats going on inside.
>
> He also he said we might have to try more aggressive meds, currently I'm
> only on birth control.
>
> I really don't want to take the other meds because I already suffer from
> those side effects ie, headaches irregular heartbeat etc
>
> I'm not keen on the surgery because if one has too many surgeries it can
> cause scar tissue.
>
> So I'm depending on a miracle.
>
> How about you? How long have you had endo? what is your treatment program?
> Have you tried homopathic remedies?
>
> I know I'm asking a million in one questions.
>
> thanks for responding to me.
>
> Jasmin
>
> >From: Allan <allan.bowers@sympatico.ca>
> >Reply-To: endo@obgyn.net
> >To: Multiple recipients of list ENDO <endo@talk.obgyn.net>
> >Subject: Re: jasmin
> >Date: Sun, 11 Jul 1999 17:54:01 -0500
> >
> >Hi Jasmin
> >Welcome to the forum. Sorry you also had a crappy doc appt. As for how
> >to handle the chronic pain, I'm not sure. i just try to get through the
> >necessities a day at a time, and lots gets left undone, like housework.
> >Its very frustrating to say the least!!!! What did your previous lap
> >find? Are you on any meds or treatments? I'm still catching up on a
> >bunch of mail, so, HAPPY belated BIRTHDAY!!!!!! I hope it was a good
> >one, and the beginning of a better year for you.
> >luv, Amy
> >
> >Jasmin Blake wrote:
> > >
> > > hi,
> > > My name is jasmin and I'm new to this chat line and fairly new to this
> >endo
> > > thing (approx 2 1/2 yrs) - YUCK!
> > >
> > > this must have been the day for dr's appt because I also had a dr's appt
> > > today and he suggested that I do another lap - which would make this my
> >2nd.
> > > I've also had 1 surgery.
> > >
> > > I feel so despondent today - tomorrow's my birthday and I'm just not in
> >the
> > > mood.
> > >
> > > How do you all handle the chronic pain???
> > >
> > > >From: cenelson2@webtv.net (Elaine)
> > > >Reply-To: endo@obgyn.net
> > > >To: Multiple recipients of list ENDO <endo@talk.obgyn.net>
> > > >Subject: Re: doc appt
> > > >Date: Thu, 8 Jul 1999 16:02:18 -0500
> > > >
> > > >(((((Amy))))
> > > >
> > > >I am so sorry things are rough for you right now. I'll bring you my
> > > >favorite stuffed animal too. I can't give you any advice on those
> >other
> > > >treatment since I have never tried any of them. I can tell you that I
> > > >don't thing I want to try any if it comes to that for me. I think I
> > > >will go for the hyst too. I have never heard of endo on the labia. I
> > > >do understand your frustration with the dr not hearing you. I was at
> > > >the dr yesterday for my third shot and I was telling her that I don't
> > > >think it is helping. All she kept saying was "The Lupron will work for
> > > >you...it WITH work." They just do seem to get it. I hope things are
> > > >better for you very soon! You'll feel better after the pain med
> > > >party.:)
> > > >
> > > >Pain free wishes
> > > >Elaine (NY)
> > > >=============
> > > >
> > > >Good afternoon all.
> > > >I should be at work, but I came home after my doc appt this AM; just
> >not
> > > >feeling well physically or emotionally, and am in no mind frame to do
> >my
> > > >job properly (I work in child protection). Went to doc undecided if I
> > > >would have the 4th lupron shot cause it doesn't seem to be doing me any
> > > >good, unless all the bad side effects are good! :) Told my obgyn that
> > > >I'm ready to ask for a hyst. She wasn't thrilled to hear that, and said
> > > >she thought I should have at least the 4th shot, and to try other
> > > >options before going that route, starting with danozol (sp?) in four
> > > >weeks if this lupron shot doesn't help at all, then maybe depo, and
> > > >another lap. I don't think she HEARD me when I told her I am in
> >constant
> > > >pain, across my lower abdomen, pelvic region, vagina, etc etc etc. She
> > > >doesn't understand how completely frustrated and fed up with all of
> >this
> > > >I am; felt like I was talking to a brick wall telling her how its
> > > >affecting every area of my life and that fertility has to take a back
> > > >seat for now. Yes, I would love to have a child, but it would not be
> >the
> > > >end of the world if I couln't because we would adopt. I right now need
> > > >to know that something can be done to help the pain, you know? And if
> > > >its a hyst, that's more than ok with me.... Anyway, I agreed to have
> > > >the fourth shot, but after that? Will wait and hope that this needle
> > > >helps, the last one didn't at all!! She gave me a script for percocet;
> > > >if it helps with the pain I'll be over the moon, but, I can't take T#3
> > > >and work so I'll never be able to take this during the day!!!! I know
> > > >some of you out there have been or are on percocet, danzanol and or
> > > >depo. How do you like it? Do the good side effects outweigh the bad?
> > > >Would you recommend? Does danzo or depo work better than lupron for
> > > >those who've had the lupron? I do read all the posts that everyone
> > > >writes even if its about something that I'm not asking, but my memory
> > > >ain't so hot (thanks to the lupron) and stuff seems to leak out of the
> > > >cracks, you know? So that's why I need to ask again, and I will go
> > > >searching in the archives as well. Another thing. I've had several
> > > >cysts on or between my inner and outer labia over the years; painful!!
> > > >Usually they break and or go away on their own; once I had to have one
> > > >surgically removed cause it wouldn't leave. Never got an explanation
> >for
> > > >'wy' - just 'sometimes it happens'. Well, guess what? Got one last
> >week,
> > > >and Sorry to be so Gross, but it finally started to leak a few days ago
> > > >and stinky!! A bloody, pussy discharge too. I'm not trying to make
> > > >anyone grossed out, really, but am being graphic cause I want to know
> >if
> > > >anyone else has had anything like this. Yesterday, it looked like a
> > > >blister. I got the obgyn to look at it today and she said that it was
> > > >bluish and that it looked like an endo spot and that if she saw that
> > > >inside of me she would say that its endo - and that she's never seen
> > > >anything like that before. Have any of you ever heard of anything like
> > > >that?!?! My body has a tendency to do very wierd things, like I grow
> > > >calcium stones in my saliva ducts, but THAT'S another story..... I'm
> > > >sorry that this is soooooo long, but I just am sooooo frustrated and
> > > >angry and fed up, and I know that you gals understand that. My dog just
> > > >looks at me funny, although she did bring me her favorite stuffed
> > > >animal!!! I'm gonna go outside with a big fat coffee and look at my
> > > >flowers for a while. Thanks so much for listening!!!! I hope you all
> > > >are having a good day. luv, Amy
> > > >
> > >
> >
>
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