Re: Stephanie
From: Michelle (anonymous@obgyn.net)
Mon Jul 19 16:51:51 1999
Stephanie,
Thanks for all the info. Yes I would definately want more info on that
new test they have. I just went today for my follow up sonogram. The
sonographer couldn't tell me anything, but I watched the screen as she moved
the thing around and saw the cysts that she marked. They have definately
grown alot since the last time. She said that she was going to fax my
report to the gyn and he should be getting in touch with me tomarrow. The
last time I had a sonogram it took the drs office three weeks to get in
touch with me to tell me how it turned out. I'm still keeping my fingers
crossed. I'm looking into other docs. now, if my gyn doesn't do anything
I'm switching to someone who will. I'm like you on the hysterectomy thing,
I want all my parts. I hope I will be as fortunate as you in finding a good
docter. I wish you all the luck in the world and thank you from the bottom
of my heart for the helpful info.
always,
Michelle
pain free wishes.
>From: anonymous@obgyn.net (Stephanie)
>Reply-To: anonymous@obgyn.net
>To: Multiple recipients of list ENDO <anonymous@obgyn.net>
>Subject: Re: anyone have experience dealing with cysts on both ovaries and
>endo at same
>Date: Sun, 18 Jul 1999 15:18:07 -0500
>
>Hey Michelle,
>
>I had a large cyst on my L ovary...they tried putting me on BC pills to
>help it to go away, but I couldn't take them. We ended up watching it
>for 3 months...and a 2nd one grew on the L...I had small ones on the R.
>I refused surgery at that point, though my doctor was really pushing me.
>3 months later we did another sonogram, and they hadn't shrunk at all
>plus I had fluid in the cul-de-sac that wasn't there before. She had me
>go for a second opinion to a oncologist who told me do to my CA125 that
>was above normal, but not in the cancer range, and the look on the
>sonogram, he thought it was endo...wanted to remove the L ovary and the
>other organs as well if he got in and the endo was bad.
>
>I did lots of research since I was very against hysterectomy due to my
>sisters horrible experience with it last year. I decided to have Female
>Reconstructive Surgery with Dr Vicki Hufnagel. When she got in there,
>she found a grapefruit sized cyst along with a smaller one on the L
>ovary, small cysts on the R ovary, and endo on my bladder and back of
>the uterus (among other things!)...she removed everything leaving all my
>organs intact. That was 6 weeks ago and I am doing great so far! Good
>luck on your search for wellness!
>
>I would say that if they had you on no treatment...7 months is longer
>than most protocals say to wait...especially with your family history.
>Also, I found in my research a cancer test called the AMAS...new and
>very accurate...let me know if you want any more information!
>
>Love and Health,
>Stephanie
>
>At Thu, 15 Jul 1999, Michelle wrote:
> >
> >the doc didn't put me on Luprin. it's been over 7 months since my cysts
> >were discovered, he hasn't done anything about them yet. said he wanted
>to
> >see if they would go away on their own before he tried anything. kinda
> >scares me waiting this long because my mom was first diagnosed with
>cancer
> >before she turned 40. but I think there more related to endo than
>anything.
> > thanks.
> >pain free wishes,
> >Michelle
> >
> >>From: "Linda" <eggshell1@hotmail.com>
> >>Reply-To: endo@obgyn.net
> >>To: Multiple recipients of list ENDO <endo@talk.obgyn.net>
> >>Subject: Re: anyone have experience dealing with cysts on both ovaries
>and
> >>endo at same time?
> >>Date: Thu, 15 Jul 1999 02:34:22 -0500
> >>
> >>Did the Lupron have any effect on the size of the cysts?
> >>Just wondering.
> >> Linda
> >>
> >>>From: kthresh@aol.com (kathy)
> >>>Reply-To: endo@obgyn.net
> >>>To: Multiple recipients of list ENDO <endo@talk.obgyn.net>
> >>>Subject: Re: anyone have experience dealing with cysts on both ovaries
>and
> >>>endo at same time?
> >>>Date: Wed, 14 Jul 1999 20:38:30 -0500
> >>>
> >>>At Wed, 14 Jul 1999, Michelle wrote:
> >>> >
> >>> >I was just wondering if anyone had dealt with cysts on both ovaries
>and
> >>>endo
> >>> >at the same time. The doc. office is supposed to call me tomarrow to
> >>>let
> >>>me
> >>> >know what my appt. is for my follow up sonogram. It's been 7 months
> >>>since
> >>> >my last sonogram. I can't tell if my pain is from the endo or the
> >>>ovaries.
> >>> >I read on one of the health pages that normally when you have cysts
>on
> >>>both
> >>> >ovaries they are supposed to recheck them in 4 to 6 weeks and do a
>lap
> >>>if
> >>> >they're still there. If you know anything about it, please let me
>know.
> >>> >Thanks,
> >>> > Michelle in Ga.
> >>> >
> >>> >pain free wishes to everyone
> >>> >
> >>> >_Hi Michelle
> >>>
> >>>I also have cysts on both ovaries and endo. Do the doctors believe
>that
> >>>the cysts are endometriomas? I am going back on Lupron for the
>treatmetn
> >>>of my cysts - which were a part of the endometriosis. I am not sure if
> >>>the pain is from one or the other but my pain seemed to worsen about
>the
> >>>time my doctor discovered the new cysts.
> >>>
> >>> Good Luck _
> >>>Kathy___________________________________________________________
> >>> >Get Free Email and Do More On The Web. Visit http://www.msn.com
> >>>Kathy___________________________________________________________
> >>>Kathy___________________________________________________________
> >>> >
> >>> >--
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> >>>
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> >>
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> >
> >--
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> >
> >_______________________________________________________________
>
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