ENDO Messages for June, 1999: Re: Endometreosis

Re: Endometreosis

From: Allan (anonymous@obgyn.net)
Mon Jun 14 12:55:32 1999

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Maybe in reply to: Denise: "Endometreosis"

Hello Denise and welcome to the forum. You've come to the right place - the support, compassion and knowledge here is incredible! I've been here since early Feb. shortly before my first lap, and the women here have helped my tremendously!!! My heart goes out to you and all that you've gone through. What does your doc plan to do now next? It must be a real challenge for you taking care of three kids!! How old is the oldest? If any of them are girls, they'll be very lucky because you will be aware that 'painful periods' etc are not normal. So many are not so lucky; me included, had docs for years sloughed off my pain and I have to wonder if I wouldn't be in this boat now if I knew then what I know now, you know?! I'm 32 next month, just diagnosed in Feb, stage II endo with severe at times incapacitating pains, doc believes have endo in my uterine wall also, just had my third shot of lupron, and good chance that am unable to have kids. Finding this site has helped me immensey in dealing with all of this. I hope you'll also enjoy this place; feel free to vent and ask questions, there's a tonne of info here!!!!! Keep us updated, and feel free to email me privately any time you want also. Painfree wishes and happy thoughts, luv Amy in Canada

Denise Dries wrote: >
> Hello, I am 35 years old, and have been suffering from Endometreosis for
> approximately 17 years. I am extremely lucky to have 3 wonderful
> children. I have had 6 major surgeries, one of them being a
> hysterectomy 2 years ago, along with 3 laporoscopys. Since my
> hysterectomy, the endo came back and I had another surgery last May.
> Again,I was full of the endo, and it had adhered to my bladder,
> intestines,bowel...even ligaments going down into my leg. the doctors
> did what they could to clean me up, without doing any damage to my
> bladder, and then put me on Lupron shots afterwards. Now here I am
> again, 6 months after I had my last Lupron shot, in extreme pain, with
> my stomach looking 4 months pregnant...My doctor put me on Danazol, 400
> mg.s twice a day...which for those of you who have had it, makes you
> feel wonderful....(not) and still, I am in extreme pain, and the
> swelling has not gone down at all. My doctor thought about going back
> in with a Laprascope, but since I was such a mess the last time they
> went in, he is trying not to do that, as he says it is dangerous. It is
> really taking it's toll on me emotionally. I have 3 children, the
> youngest being 4, and I want to enjoy this summer with them..but it
> isn't very easy when I am hurting, and cannot barely walk due to the
> pain. I recently found the Internet, and am hoping to get some support
> from other sufferers...
>
> --
> Denise Dries
>

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Maybe in reply to: Denise: "Endometreosis"

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