ENDO Messages for June, 1999: Re: Feeling doomed-in pain and on the verge of a hysterectomy!

Re: Feeling doomed-in pain and on the verge of a hysterectomy!

From: Allan (anonymous@obgyn.net)
Thu Jun 10 16:55:00 1999

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Dear Angela I'm sooo sorry you are having such a rotten time. My heart goes out to you. I know it sounds trite, but I know how you feel with respect to having a hard time baring your soul - I am a social worker and know how hard it is to 'let it all hang out' and be open and vulnerable. But I've learned I need to do that, for me, and for everyone around me, and part of that lesson has come from all the wonderful women who make up this forum. We need to share our pain and anger and fears. I wish I could say or do something that would make a huge difference, but in reality, I probably can't. But believe me, I care, and so does everyone else here. I also am dealing with the real possibility that my quality of life will not be improved without a hyst, and my hubby and I have been talking about adoption; doesn't mean I'm not a basket case sometimes. I feel very frustrated, wonder when the pain will ever end. The stabbing pains you talk about, I get them around my left ovary usually the worst; lots of scar tissue/adhesions was there. Also get them in my uterus; obgyn says the endo is growing right in the muscle wall of my uterus. Somedays used to be so bad I could hardly walk the pain was so bad. I truly do empathize with you, Angela. I'll be praying for you, and will keep you in my thoughts for better days ahead. What's your doc planning to do next? We're all here for you whenever you need us, and feel free to email me privately any time you wish if I can be of any help. luv, Amy

anonymous@obgyn.net wrote: >
> Hi everyone. I feel so vulnerable right now b/c I usually respond to e-mails
> and infrequently bear my soul. I feel at such a loss right now. I spent 5
> days in the hospital last week. I literally cannot walk without falling to
> the ground ( I guess endo on my nerves)- I have, they think an endometrioma.
> Do these need to be removed. I feel like I need another surgery (have had 6
> in 5 yrs.) b/c I feel the endo spreading like an alien but don't think I can
> handle the trauma emotionally. I am all out of gas and feel completely
> isolated....I know you all can relate. I'm 31 and trying desperatley to save
> my organs for what I don't know anymore b/c truthfully I think adoption is a
> beautiful thing-but I am not married which makes this all the more difficult.
> I feel so let down by most everyone right now-family, frineds, I feel like
> nobody understands and really how can they- they don't have this devil living
> inside of them. I usually don't bear my soul b/c I am a psychologist and am
> so used to listening to everyone else bear but tonight I realized this is the
> point of my being a part of this forum to gain some support.I have taken 3
> dilauded tonight and around the clock and the pain is going right through- Do
> you guys have knife jabbing pains where you feel you're uterus is so
> inflammed and you end up on te ground b/c you simply cannot walk?Thanks for
> listening everyone. hugs and prayers to all- love, Angela
>

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