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NewFrom: Elaine (anonymous@obgyn.net)Mon May 31 12:31:08 1999
Hi, I just subscribed to this list a few days ago and I thought it was about time I introduce myself. My name is Elaine and I live in Buffalo, NY. I am 33, married to a wonderful man for 7 years and have no children (my mother-in-law would like it to be otherwise). I was diagnosed with endo on June 5, 1998 although I am sure I went undiagnosed for years. I have always had heavy painful periods but I just thought that was the way things were. And I have had lower back pain off and on since my late teens for which my dr could find on cause or cure. In Jan. 98 I stopped having my periods. Thinking I was pregnant I went to my pcp to find out for sure. The test can back negitive so she sent me to a gyn. The gyn found that I had a 5cm cyst on my left ovary. She said lets wait a month to see if it goes alway. It got bigger. Next she wanted me to take hormones. By this time I was in so much pain I couldn't take it any more so she told me she would do a lap and drain the cyst. At this time I had ever even heard of endo. I thought she would go in, drain the cyst, I would go on with my life and that would be that. After the surgery she told me that the cyst on my left ovary had grown to the size of a softball and I had two smaller cyst on my right ovary. She had removed the entire left ovary and about a third of the right. She said that there would be a pathology done to confirm it but she was sure the cysts were endometriomas; the pathology did later confirm this. She put me on bcp and I was more or less pain free until March. My pain has continued to increase so she asked if I would like to try Lupron. I had my first shot on May 19. I guess we will see where it goes from here. It wasn't until my pain started to come back that I realized that I might have a serious problem (Maybe I was in denial). I decided I had better educate myself on endo if I am to get good treatment so I started looking up endo on the web. It is from ladies like you that I have gotten the most info. Keep up the good work! For me right now the hardest thing to deal with is living with the pain on a daily basis and what that does to your life. I really need to talk to other people who are goes through the same thing. My family tries to be sympathetic but you really can't understand it unless you live it. Thanks for listening to my story. Sorry it got so long.
-- Elaine (NY)
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