|
Re: My e-mail to OPRAH
From: al (anonymous@obgyn.net)
Fri May 21 21:42:51 1999
This is great!! Hopefully we won't all be kept in suspense for too very
long waiting for a response. :) Thank you for trying to increase
awareness!
luv, Amy
anonymous@obgyn.net wrote:
>
> This is my first replying to messages posted on the internet. I am
> pretty illiterate to the WEB. But I found this, and I am grateful. I
> think that this letter is wonderful and it sounded like my life since I
> was diagnosed 8 years ago with ENDO and they are now talking about a
> hyst, but I am only 28. If I can be of any help, I am behind this
> 100%%.
>
> Thanks
>
> Shelly
>
> At Fri, 17 Jul 1998, Barcus-Roberts, wrote:
> >
> >I think the letter sounds great.....let's hope the show will happen!
> >Kristin
> >
> >Well, you said write to Oprah and I took you seriously. I tried my
> >best to represent all the stories in a short and readable form.
> >Here's my two cents. If we all send one I think we might get noticed.
> >
> >Dear Oprah:
> >
> >I have watched your show for many years and have always been impressed
> >with your diplomatic and serious approach to issues that we all of us
> >face in our lives. Myself and a large group of women have been
> >struggling with a very serious and painful issue that we would like to
> >appeal to you with for help and the opportunity to creat an awareness
> >which may lead to a cure or at least a little less suffering.
> >
> >What myself and my friends suffer from is a very debilitating and
> >painful disease called "Endometriosis". At first glance it seems to
> >be just another women's problem...and in all fairness, it is. But the
> >problem with this horribly painful disease is that there is currently
> >no cure and a large degree of uncertainty and mystery about why it
> >occurs and the factors which contribute to its propogation within our
> >bodies.
> >
> >Just this week I watched a wonderful show of yours where you discussed
> >the pro's and con's of Hysterectomy and I noticed you mentioned a
> >number of times Endometriosis. My online "Endo-Sisters" support group
> >and myself were overjoyed that at least a little recognition was given
> >to our plight.
> >
> >We as a group suffer from numerous, lifetime, uncurable symptoms and
> >undergo sometimes 30-50 operations and massive doses of painkillers
> >and hormone injections in the course of our lives to simply keep the
> >endometriosis at bay. Only to finally lose the battle to hysterectomy
> >or worse, cancer. Many of us never have the chance to have our own
> >children, no matter how many years we try. Many of us lose our jobs,
> >mates and the faith and respect of family and friends because we are
> >too tired, too sick and too misunderstood to hold it all together.
> >
> >We as a group on our own have discovered many similarities of
> >experience that the medical community is just now beginning to
> >acknowledge. Things that for 20 years some of us have been telling
> >our doctors. For instance; most of us suffer from immune deficiency,
> >many of us also have Mitral Valve Prolapse, many of us have mild to
> >severe allergies, almost all of us have serious chronic fatigue
> >syndrom and spend a lot of time "resting" (this we feel links back to
> >the immune-deficiency), and finally many of us have been shuffled from
> >doctor to psychologist to doctor and finally told that we are crazy.
> >There are so many similar threads in our stories that it is far too
> >coincidental to ignore.
> >
> >Oprah, we appeal to you to help us by letting us appear on your show
> >or just having a show on our issue to create a greater awareness of
> >our disease and to open the door for more women to speak out about
> >their pain and suffering. We want to alert the medical community to
> >the linking of our disease to something more than just chance and
> >heredity...which is so far what is currently believed. We are not
> >willing any of us to continue to be victims of this debilitating and
> >painful disease and we want to speak out and gather together for
> >support and a cure.
> >
> >Thank you Oprah for listening. Please consider us.
> >
> >\
>
|
|
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)