ENDO Messages for May, 1999: Re: Have a dr appt and need advice

Re: Have a dr appt and need advice

From: al (anonymous@obgyn.net)
Sat May 8 15:22:23 1999

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Hi Tina My heart goes out to you for all you've gone through, and for having such a coldhearted insensitive doc. He sounds like he's right out to lunch (sorry). Would probably be a good idea for you, and your husband, to write down the things that you want to talk about before you go so you can make sure that the doc doesn't just shut you up and ignore your concerns. It'd be a good idea to ask him the possible options for treatment and the risks and benefits of each of them so you and your husband can decide what is your next plan of attack. Is this doc an eno specialist? He sounds mighty darn uncompassionate! What dose of lupron are you on? I just had my second shot last week, 3.75 mg. Some days are worse than others.... If your doc gives you the runaround and doesn't seem to have the time or interest in helping you, doesn't take your pain seriously or downplays your problems, I'd be seriously thinking of finding a more caring and competent doc. This endo thing is too serious and life altering to be treated halfheartedly like it sounds like the docs done. Good luck at your appointment, and hope you have a good weekend. Painfree wishes to you and everyone. luv, Amy

TINA J TRUJILLO wrote: >
> Okay guys- I need some help. I have an appointment with my gyn
> this coming Thursday and I am trying to think of
> questions/comments to ask and talk to him about. Here is a little
> recap on my endo history. Have had it since age 12 and I am now
> 26. Had a lap done in January ( 1st one) they found endo and I am
> at stage IV. I have been on Lupron for five months and the pain is
> returning. I do not do well on birth control. I get nauseous,
> migraines and other assorted problems. I also do not menstruate.
> I had an endometrial oblation 2 years ago due to continuous
> breakthrough bleeding after my son was bor. ( I bleed for a over
> a year straight- no breaks) my Dr. is also very hard to get
> things through to. I was bedridden for 6 months this past winter
> before my surgery because I was told it was something this
> something that and I was not in as much pain as I thought I was. So
> I was told anyway. Went to see my gyn finally and he said “well-If
> it is bothering you enough we can do a Lap.” Then after my
> surgery the pain got worse! He gave me a shot of Lupron and had
> missed some endo. Until I finally passed out from the pain right in
> his office. (despite the fact that my husband called and tried to
> talk to him) I was treated as though I was over reacting. I had
> gone in to shock Still I even hate to call his office because I feel as
> though I am bothering them If I have a question. So I need help on
> figuring out the right questions to ask how to get my opinions and
> ideas across. Sorry I rambled on so. Thanks for the help in
> advance.
> Tina MN
>

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