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Re: Presacral neurectomyFrom: anonymous@obgyn.netWed Mar 31 06:24:10 1999
In a message dated 3/30/99 7:25:30 PM Pacific Standard Time, thumbs@execpc.com writes: << Hi! I was wondering if you could explain to me what they did and stuff because I am trying to find an alternative to a hysterectomy. Email me privately if you would feel more comfortable. Thank You Hope everybody is pain free tonight
Stacey
>> Hi Stacey, I called the Endo Assn for a recommendation for an endo specialist to help me, because the doctors in Ft. Wayne seem to believe that a total hyst is the only answer. The dr I found is wonderful, kind, caring, empathetic, and definitely said a hyst is the LAST CHOICE when 1st dealing with this disease. I had had a diagnostic lap done last Halloween to find out what the pain was from, had no idea it would be endo, which I knew nothing about. That dr did NOTHING, just looked around, saw lots of endo & adhesions, took a picture, then closed me back up, total time in surgery 13 minutes, hmm. If I didn't have the picture, I'd wonder if he'd even looked inside me in that short of time!!! Anyway, he told my husband that a hyst was the only answer, when I was "tired of dealing with the pain". Not a solution for me, so I went online researching endo & found lots of info that supported my gut instinct on this. The endo specialist told me that certainly he could remove the endo and leave my organs intact, that a hyst was not warranted at this point. (my kind of dr) But he did say that I'd probably end up with a laparotomy due to the extent of adhesions, so I was prepared for that. He did try a laparoscopy first, but just couldn't get to all affected areas to "clean me out". He also had a bowel surgeon present to deal with all the bowel adhesions (extensive), and had me do a bowel prep the day before surgery in case they had to do a bowel resection if endo had invaded the deep bowel layer. He has a microlaser, which most doctors don't, as it's very expensive equipment, lots of training to use it, etc. This is really important, Stacey, cause without the microlaser, he wouldn't be able to see the microscopic endo lesions, would not have been able to excise/vaporize them, and they would have grown larger, causing the same problems all over again, leading to MORE SURGERY down the road. So even though this surgery was expensive, I feel it was worth it, because I feel pretty sure that I won't need anymore surgeries. What he did was excise/vaporize/lyse the endo & adhesions, a uterine suspension (mine was tipped backwards and glued to my posterior cul-de-sac, so this helps to keep them away from each other for healing & avoiding further adhesion growth), the presacral neurectomy (basically disconnects that nerve so the lower back pain & uterine pain, and possibly pain with intercourse, will be gone), ended up doing a right ureter resection (removed part of the ureter as endo had invaded it), had to remove my right fallopian tube as it was malformed from birth & too badly damaged by endo to repair, also found an extra right ovary that he removed, and I believe he did a D&C in the beginning of the surgery, so my periods will be alot lighter. Hope this helps, feel free to write me anytime, Debbie H
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