Re: Adhesions(.......If......)-------->>>there is HOPE!!<<<
From: Michele (anonymous@obgyn.net)
Sat Mar 27 09:03:02 1999
HUH???? What's going on here? I think it's obvious that you were giving
hope in your post. What is it that makes you think I am not in
agreement? Are you ok? It sounds like you are feeling challenged or
perhaps you are confused between posts and e-mail you sent me. I don't
know. I am familiar with all the Wiseman sites below...I was speaking
of Dawn Higgin's endo Forum, and my e-mail to you clarified that I was
an infrequent visitor to this site. This is obgyn.net's endo Pavillion.
I'm not taking any credit away from you. Where are you getting that
from? I'm not an expert on anything. LOL!! :-) It's a give and take
thing...I've received e-mail from Wiseman a few weeks prior to his
announcement of publication in the New England Journal of Reproductive
Medicine. I wrote him in appreciation for his acknowlegement of pain in
women in one of the articles you listed below, but that my doctor would
not use INTERCEED on me because the mesh studies were mixed. Obviously,
I was looking for a less invasive product-- the GEL because it didn't
bunch up in the scope.
Sorry if you feel something I don't on this one. I also mentioned
Flogel in the e-mail. Wiseman's information is glaringly available--I
mentioned Sepragel because Flogel, Intergel, and Sepragel are all
fighting to be first. In my opinion that was good for those of us who
suffer from adhesions. Chrissy has posted that the gel did not work for
her. Oh dear. That's my concern, not who is "expert". Um, you also
said you saw a post of mine on wdcyber in your e-mail, and I really
appreciate you offering me the list. I do already have one, anything
that you have is greatly appreciated as I SAID. HAHAHA. There's no
conflict.
Thinking Positive,
At Fri, 26 Mar 1999, Helen wrote:
>
>Michele,
>I checked out the genzyme website....BUT only Seprafilm was listed.
>
>Michele, apparently you are very new to the Endo Forum...because most of
>the women on the Endo Forum recognize that I have done extensive
>research on adhesions, adhesion barriers, endometriosis, and related
>medically-related topics.
>My *Adhesions.....If......message* was intended to help women (and men)
>recognize how off-base and wrong so many doctors are in regard to the
>symptoms of both adhesions and endometriosis. When a woman (or a man)
>complains of severe chronic pain...THERE IS A REASON for the chronic
>pain!!!!
>Adhesions and Endometriosis are among the many diseases/disorders which
>continue to boggle the minds of researchers....BUT....Currently there
>are clinical trials happening throughout the United States to help
>researchers take whatever steps are necessary in order to perfect a
>gel-adhesion barrier which will meet FDA approval....possibly by
>Fall/Winter 1999. Surgeons in Europe and Canada are already using
>gel-adhesion barriers following surgical procedures.
>
>It won't be long before adhesion-sufferers will be able to have an
>education and support website of their own!!! A support group for the
>many women (and a few men), who suffer from chronic pain caused by
>post-surgical adhesions and caused by the implants of endometriosis, has
>been organized!!! The name of this support and education group
>is....INTERNATIONAL ADHESIONS SOCIETY.
>
>Dr. David Wiseman, Ph.D. has a website which he has named
>SYNECHION.... Greek for "adhesion." This website is a one-stop place
>where you can find a lot of information on adhesions and adhesion
>barriers. SYNECHION can be founs at:
><http://members.aol.com/synechion?>
>
>When you go to the SYNECHION website, be sure to take time to read the
>transcripts from Dr. Wiseman's Chats on the "Prevention of
>Post-Surgical Adhesions", which he hosts usually every month.
>
>Also: Be sure to read his article, A PATIENT'S GUIDE to ADHESIONS and
>RELATED PAIN...or...YOU ARE NOT ALONE!
>
>Dr. Wiseman is the person who had the vision to organize the support
>group, INTERNATIONAL ADHESIONS SOCIETY (IAS) for adhesion-sufferers.
>There will soon be an adhesions website on the Internet.
>Adhesion-sufferers will soon have a place on the Internet where they can
>share their experiences, be supported by others, learn more about
>adhesions, and also be among the first to hear when a gel-adhesion
>barrier has been approved by the FDA.
>
>Dr. Wiseman is not a doctor...but he has all of the qualifications of a
>medical professional...since he has done research on adhesion barriers
>himself. You can't meet a nicer, more caring, compassionate person than
>Dr.Wiseman!!!
>
>If any of you women are suffering with chronic pain, I am willing to
>share the websites I have found which are related to adhesions and
>endometriosis. You have my permission to e-mail me.
> *******THERE IS HOPE*******
>- - - - - - - - - - - - - - - -
>At Fri, 26 Mar 1999, Michele wrote:
>>
>>Helen,
>>Look for Sepragel and Flogel trials. Here is the site.
>>
>>http://www.genzyme.com/ir/ggar97/surgical/surgical.htm
>>
>>I found the site on Sepragel and Seprafilm...and am looking into whether
>>another company got ahead of the game. The gel can be used
>>laparoscopically and will not "bunch" up in the scope. This was the
>>issue with INTERCEED and led to laparotomies. There is some data which
>>suggests taht INTERCEED may actually cause "injury" leading to more
>>adhesions in some, but not all individuals.
>>
>>Simply by having surgery, you increase the chance of adhesions. That's
>>the catch 22 cycle. UGH.
>>
>>Thanks so much for your e-mail and support.
>>
>>At Thu, 25 Mar 1999, Helen wrote:
>>>
>>>All of the items (below) have been a part of my 29 year ordeal with
>>>chronic pelvic pain:
>>>
>>>** If you have severe chronic pelvic pain.....
>>>** If have all tests have been normal.....
>>>** If you are told that your symptoms are functional in origin.....
>>>** If you have been told that stress is causing your chronic pain.....
>>>** If you have been told that "It's all in your head".....
>>>** If you are told that there may be an allergy responsible for your
>>>pain.....
>>>** If your doctor has laughed at you, when you have come to him/her to
>>>find an answer for your pain and tests are normal.....
>>>** If you have been told that there is nothing wrong.....
>>>** If you have been told that you have Irritable Bowel Syndrome (IBS)
>>>but you do not have the classic IBS symptoms of constipation and
>>>diarrhea....
>>>** If you have been told that you have Fibromyalgia because your chronic
>>>pain symptoms are felt or referred to other parts of your abdomen.....
>>>** If your doctor suggests that you have your mental health
>>>evaluated....
>>>** If your doctor prescribes Tranquilizers.....
>>>
>>>ADHESIONS COULD BE THE CAUSE of your CHRONIC PAIN. I had a Diagnostic
>>>Laparoscopy in 1997 which PROVED that there was a bonafide reason for
>>>the severe chronic pain I had endured.....MASSIVE ADHESIONS!!!
>>>
>>>A DIAGNOSTIC LAPAROSCOPY is the ONLY WAY that ADHESIONS can be
>>>diagnosed.
>>>
>>>A DIAGNOSTIC LAPAROSCOPY is the ONLY WAY that ENDOMETRIOSIS can be
>>>diagnosed.
>>>
>>>**If you want to learn more about ADHESIONS and ENDOMETRIOSIS, I am
>>>willing to share the websites which I have on these subjects....as well
>>>as other medically-related topics. You have my permission to e-mail me.
>>>
![[ endo@obgyn.net ]](../../images/endo_at_obgyn.gif)