-VISIT OUR OTHER FORUMS- Breast Health Forum Endo@OBGYN.net Fibroid Forum Mujer (en espaņol) PCOS Forum PCOS Diet Forums PCOS Medication Forum Pregnancy & Birth Forum Vrouw en Gezondheid (nederland) Women's Health Forum Young Women's Health Forum  search:

Adhesions(.......If......)-------->>>there is HOPE!!<<< From: Helen (anonymous@obgyn.net) Fri Mar 26 14:14:32 1999 Messages sorted by: [ date ][ thread ][ subject ][ author ] Next message: Toni: "Re: Trazadone" Previous message: Daniel: "Fw: Chronic Pelvic Disease" In reply to: Michele: "Re: Adhesions..........If............." Next in thread: Michele: "Re: Adhesions(.......If......)-------->>>there is HOPE!!<<<" Reply: Michele: "Re: Adhesions(.......If......)-------->>>there is HOPE!!<<<" Michele, I checked out the genzyme website....BUT only Seprafilm was listed. Michele, apparently you are very new to the Endo Forum...because most of the women on the Endo Forum recognize that I have done extensive research on adhesions, adhesion barriers, endometriosis, and related medically-related topics. My *Adhesions.....If......message* was intended to help women (and men) recognize how off-base and wrong so many doctors are in regard to the symptoms of both adhesions and endometriosis. When a woman (or a man) complains of severe chronic pain...THERE IS A REASON for the chronic pain!!!! Adhesions and Endometriosis are among the many diseases/disorders which continue to boggle the minds of researchers....BUT....Currently there are clinical trials happening throughout the United States to help researchers take whatever steps are necessary in order to perfect a gel-adhesion barrier which will meet FDA approval....possibly by Fall/Winter 1999. Surgeons in Europe and Canada are already using gel-adhesion barriers following surgical procedures. It won't be long before adhesion-sufferers will be able to have an education and support website of their own!!! A support group for the many women (and a few men), who suffer from chronic pain caused by post-surgical adhesions and caused by the implants of endometriosis, has been organized!!! The name of this support and education group is....INTERNATIONAL ADHESIONS SOCIETY. Dr. David Wiseman, Ph.D. has a website which he has named SYNECHION.... Greek for "adhesion." This website is a one-stop place where you can find a lot of information on adhesions and adhesion barriers. SYNECHION can be founs at: <http://members.aol.com/synechion?> When you go to the SYNECHION website, be sure to take time to read the transcripts from Dr. Wiseman's Chats on the "Prevention of Post-Surgical Adhesions", which he hosts usually every month. Also: Be sure to read his article, A PATIENT'S GUIDE to ADHESIONS and RELATED PAIN...or...YOU ARE NOT ALONE! Dr. Wiseman is the person who had the vision to organize the support group, INTERNATIONAL ADHESIONS SOCIETY (IAS) for adhesion-sufferers. There will soon be an adhesions website on the Internet. Adhesion-sufferers will soon have a place on the Internet where they can share their experiences, be supported by others, learn more about adhesions, and also be among the first to hear when a gel-adhesion barrier has been approved by the FDA. Dr. Wiseman is not a doctor...but he has all of the qualifications of a medical professional...since he has done research on adhesion barriers himself. You can't meet a nicer, more caring, compassionate person than Dr.Wiseman!!! If any of you women are suffering with chronic pain, I am willing to share the websites I have found which are related to adhesions and endometriosis. You have my permission to e-mail me. *******THERE IS HOPE******* - - - - - - - - - - - - - - - - At Fri, 26 Mar 1999, Michele wrote: > >Helen, >Look for Sepragel and Flogel trials. Here is the site. > >http://www.genzyme.com/ir/ggar97/surgical/surgical.htm > >I found the site on Sepragel and Seprafilm...and am looking into whether >another company got ahead of the game. The gel can be used >laparoscopically and will not "bunch" up in the scope. This was the >issue with INTERCEED and led to laparotomies. There is some data which >suggests taht INTERCEED may actually cause "injury" leading to more >adhesions in some, but not all individuals. > >Simply by having surgery, you increase the chance of adhesions. That's >the catch 22 cycle. UGH. > >Thanks so much for your e-mail and support. > >At Thu, 25 Mar 1999, Helen wrote: >> >>All of the items (below) have been a part of my 29 year ordeal with >>chronic pelvic pain: >> >>** If you have severe chronic pelvic pain..... >>** If have all tests have been normal..... >>** If you are told that your symptoms are functional in origin..... >>** If you have been told that stress is causing your chronic pain..... >>** If you have been told that "It's all in your head"..... >>** If you are told that there may be an allergy responsible for your >>pain..... >>** If your doctor has laughed at you, when you have come to him/her to >>find an answer for your pain and tests are normal..... >>** If you have been told that there is nothing wrong..... >>** If you have been told that you have Irritable Bowel Syndrome (IBS) >>but you do not have the classic IBS symptoms of constipation and >>diarrhea.... >>** If you have been told that you have Fibromyalgia because your chronic >>pain symptoms are felt or referred to other parts of your abdomen..... >>** If your doctor suggests that you have your mental health >>evaluated.... >>** If your doctor prescribes Tranquilizers..... >> >>ADHESIONS COULD BE THE CAUSE of your CHRONIC PAIN. I had a Diagnostic >>Laparoscopy in 1997 which PROVED that there was a bonafide reason for >>the severe chronic pain I had endured.....MASSIVE ADHESIONS!!! >> >>A DIAGNOSTIC LAPAROSCOPY is the ONLY WAY that ADHESIONS can be >>diagnosed. >> >>A DIAGNOSTIC LAPAROSCOPY is the ONLY WAY that ENDOMETRIOSIS can be >>diagnosed. >> >>**If you want to learn more about ADHESIONS and ENDOMETRIOSIS, I am >>willing to share the websites which I have on these subjects....as well >>as other medically-related topics. You have my permission to e-mail me. >> >>- - - - - - - - - - - - - - - - - - - - - >> >>At Thu, 25 Mar 1999, Jimbo wrote: >>> >>>Amber, >>>I saw you post to Toni, and I also apologise for butting in. I've had >>>ongoing problems with adhesions as have many others here so I thought I >>>would add my two cents. >>>Unfortunately with adhesions they can appear anywhere and the more >>>surgerries you have the more adhesions. They can cause a lot of pain >>>even though a lot of Drs will tell you they don't. I've had them >>>everywhere, tubes, ovaries, rectum and bowel. You may have had them two >>>years ago or they may be a result of your last lap. >>>Good luck and I hope you get some answers. There is not a lot that can >>>be done to prevent them and as far as the pain, I've tried quite a few >>>things and at this point choose not to use anything unless it gets >>>really bad. Hope this helps! Jamie > Next message: Toni: "Re: Trazadone" Previous message: Daniel: "Fw: Chronic Pelvic Disease" In reply to: Michele: "Re: Adhesions..........If............." Next in thread: Michele: "Re: Adhesions(.......If......)-------->>>there is HOPE!!<<<" Reply: Michele: "Re: Adhesions(.......If......)-------->>>there is HOPE!!<<<"

recommended search...
OBGYN.net forums endometriosis zone Web

use when must restrict search to only the endometriosis forum...
Enter search keywords:
	Returns per screen: 10 25 50 100 250 Require all keywords:

Return to

Technical Problems: webmaster@obgyn.net Last Updated: Mon Nov 2 04:17:36 2009