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Re: Adhesions? Let me tell you about mine......(PART 2)From: Helen (anonymous@obgyn.net)Wed Mar 24 10:06:22 1999
At Wed, 24 Mar 1999, Christine wrote:
>Hi Helen: ```````````````````` Dear Christine and others who suffer from adhesions: There is no way that I can tell you about everything I have done in order to try to find the *correct diagnosis* for the chronic pain I have endured on a daily basis since that nightmare of a laparotomy surgery in 1970!!!!!! I was 38 years old at the time and had 4 children to try to be a mother to at that time...ages six, eight, thirteen, and sixteen. My husband was a teacher and respected member of the community where we live.
>From 1970 to 1997....I had been to every clinic I could find within a In 1980 at the Mayo Clinic I endured 4 different nerve blocks over a span of 4 days....which were all unsuccessful. I completed at least four Minnesota Multiphasic Personality Tests during those 27 years...which was standard procedure at the Mayo Clinic. I was x-rayed to death...and far too much blood was drawn...not only at the Mayo Clinic but at all the various clinics and hospitals I had been to. No doctor or surgeon believed me! I was continually told that that my chronic pain was functional in origin...all tests were negative! Basically, all of the doctors and surgeons, whom I had seen, were telling me that my chronic pain was NOT REAL...that it was "all in my head"...implying that I was a hypochondriac. I was told that perhaps a food allergy was responsible for my pain...so I was put on various diets for food allergies. One doctor told me that I had Fibromyalgia. Several times I was told that Irritable Bowel Syndrome (IBS) was the reason for my chronic pain....even though I did not have the classic IBS symptoms of alternating constipation and diarrhea. These symptoms are just a partial list of the diagnoses, which I had been given over that span of 27 years. Everytime when all of these doctors told me that everything was norma...that there was nothing wrong....I felt humiliated! I felt shamed! I felt defeated! My faith in doctors had been shattered! I felt sure that even my family and friends, who were trying to be supportive to me, did not believe me. Do any of you know what it is like to be continually told that there is nothing wrong with you? Even my faith in myself was "wearing thin." So, Christine, to repeat what you said: ".....but why haven't you followed up on the return of the pain? Just because it feels just like the pain you had before your had the lap in 1997 that confirmed it was adhesions, does not mean it is necessarily the same thing!" I know that what I have written today does not touch on the diagnostic laparoscopy which I had in 1997...but perhaps it is helpful to know something about my previous experience with doctors and the many incorrect diagnoses they had given me in previous years....in order to put everything into context. Christine, I am glad that you responded to "Adhesions? Let me tell you about mine..." Your response will help me as I continue to make sense of my personal saga with post-surgical adhesions. I have much more to add to what I have already written today...but my message here has gotten to be far too long...so I will simply say: **TO BE CONTINUED**
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