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Re: Doctors and the Internet-ToniFrom: Toni (anonymous@obgyn.net)Sun Mar 14 16:37:28 1999
At Sat, 13 Mar 1999, Christine wrote: > >At Fri, 12 Mar 1999, Toni wrote: >> >>hello chris, >> >>I am okay today, I have been trying to take a different attitude woth >>things, I was alittle worried for a few days, I had trouble moving >>bowels even after senekot, and caused more pain, but today I made sure I >>got them moving. Good old prune juice in the morning, I did start to >>worry b/c they told me if a laxative don't move your bowels, it is not a >>good sign, but I am on darvocet now too, and that and the trazadonecan >>cause constipation, so I am sure that attributed to the problem. >> >>chris, some drs think I am crazy to worry about the colon, but when I >>left the hospital in sept, my gyn told me what he wanted me to do after >>surgery, and he said that he does not want to see me end up in the >>hospital for a week with a tube down my nose, so deep down he does worry >>about the situation with the transverse colon, I have sort of got my >>mind away from it though, and another thing too, when I asked the pain >>specialist about the night I read the post about the woman with the >>bowel died and gangrene set in, I told her what kind of night I had >>after that, and she told me the internet is a dangerous place to be, you >>will see EVERYTHING and some of it will scare you, so I try to not stay >>here too much. I told her that I talk to women who understand there, I >>have no one to talk to, my mom was my best friend, and she is gone! She >>is setting up counseling for me, I do not know how long this will take, >>always have to wait. >> >>i am going to go see my father today, he says he misses me stopping >>over, I used to stop alot, the way things have been going for me, I do >>not go much, but the drugs they have me on, it takes forever to get >>going in the morning. I think the trazadone may be starting to help, at >>times. Making things alittle easier, as long as my bowels move. >> >>Still am uncomfortable, especailly if I try to move around to much, I >>have decided I just have to go slower til things get better! >> >>My phone keeps knocking me off , So I will send this message right away! >> >>toni > >Hi Toni: >I must say I am a little offended by your new doctor's opinion on the >Internet, but it seems to be a common attitude among doctors. If >doctors did their job completely, patients wouldn't need to turn to the >"dangerous" Internet for support. Even when doctors do as much as they >can why can't they recognize that some patients need additional support >and turn to forums such as these. Instead, they (doctors) seem to feel >threatened, even though they can't do any more for the patient that they >are already doing. (if that is the case, many times it is not) >Most people are able to understand that there are some very scary >situations out there, but they are rare and probably will not happen to >them. This is what she should have explained to you, not tell you to >stay away from the Internet! That would be like telling you that you >better not drive anymore because its a major threat to your life (much >more dangerous than the Internet is!) You seem to be worrying less. >Good luck on Monday with your gyn. I hope you ask him specific >questions about further testing and if that will alleviate your >concerns. I liked that description of the barium enema that someone >posted. Sounds like that might be appropriate for you. > >CHris Hi chris, have you been okay? have not heard from you for awhile, just wondering if you are okay! I am not getting the relief I thought I would get from the trazadone, none of them seem to help, i guess there is NOTHING to help when it comes to adhesions pulling on your bowel. I even thought I would see more relief with the darvo cet, but not really. I have given up on these drugs, I do not mean I will not take them, I just do not see my help, except I DO sleep ALL night, as far as the pain, my husband told me when he talked to my gyn. he will not do any lap or anything until I am almost a year from the last surgery, and basically that is what the pain specialist said too. I go to the gyn tomorrow at 2:00, and the pain center for the counseling on Friday. I wish I knew what they were goihg to talk about, i do not see where they can help, but even the gyn said I need to get counseling while on some of the drugs they are giving me. I wil let the gyn know about the tests I wish SOMEONE would order, and maybe something will at least show the bowel situation, I told my husband today, the pain has been so far down, and it is pulling so bad I cannot stand it anymore, I do not know what to do, I just keep getting more down everyday, by august I will be nuts! Oh well, all the drs said I HAVE to stay away from surgery for awhile, so that is what I have to do, I will suffer til then, I am concerned about the relatons with my husband, I could care less about sex, I want no part of it! This has got me VERY worried, and I do not know how to address this to my dr tomorrow. Whne ever I see him, he asks if I am sexually active, and I say NO! the last time I said that he said why not? Well I hurt, and I really am too down to enjoy anything, that is why I try to write on her for support, and the drs tell me it os dangerous, well maybe sometimes, but I need someone! Toni
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