ENDO Messages for March, 1999: Re: endo on legs

Re: endo on legs

From: allan (anonymous@obgyn.net)
Sun Mar 14 14:21:01 1999

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Reply: Tiina: "Pain meds - Tracy"

Tracy Fritz wrote: >
> Kim,
>
> Thanks for responding. Yes it is awful when the doctor you go to who is
> supposed to have read your records and who should be somewhat
> knowledgeable in the area of endo to try to limit your meds or even take
> them away. The stigma I face is so frequent I feel like everyone thinks
> I am a junkie. Just a few weeks ago my husband and I went to see a pain
> doctor that my gyn referred me to after I was released from the hospital
> after being admitted for pain control. The minute the doctor walked in
> she said, "I just want to let you know right off the bat that I will not
> be giving you any oxycontin." We were dumbfounded by the way she just
> came in there like that and announced that. We asked her why and she
> coldly told us that she spoke to my previous doctors and said that I was
> addicted to the pain killers and that I went to er's looking for meds.
> She also said that my records indicated drug abuse. Well all of that was
> a lie but it didn't matter at the time. AFter all we've been through
> with this damned disease I just burst out into tears. I couldn't help
> it. When we got back home my husband called the gyn and told him about
> it. So now on Monday we have an appointment with another pain doc and
> hopefully this one will be better. THanks for letting me share everyone.
> praying for pain free days,
> tracy
>
> >From: ryan@muscanet.com (Kim)
> >Reply-To: endo@obgyn.net
> >To: Multiple recipients of list <endo@talk.obgyn.net>
> >Subject: Re: endo on legs
> >Date: Sat, 13 Mar 1999 14:05:06 -0600
> >From anonymous@obgyn.net Sat Mar 13 12:05:09 1999
> >Received: from talk (anonymous@obgyn.net [127.0.0.1])by talk.obgyn.net
> (8.8.8/8.8.8) with SMTP id OAA17782;Sat, 13 Mar 1999 14:05:06 -0600
> >Message-Id: <199903132003.OAA17691@talk.obgyn.net>
> >Errors-To: endo-request@obgyn.net
> >Originator: endo
> >Sender: endo@obgyn.net
> >Precedence: bulk
> >X-Listprocessor-Version: 6.0c -- ListProcessor by Anastasios Kotsikonas
> >X-Comment: OBGYN.net Endometriosis Pavilion mail service
> >
> >At Sat, 13 Mar 1999, Tracy wrote:
> >>
> >>Corrine,
> >>
> >>I have the same problem. After a presacaral neurectomy and a
> >>uterosacaral nerve ablation, the pain radiates from my adhesion-filled
> >>lrq and sets my legs on fire. Usually it is only the right leg but
> >>sometimes it is both. The pain is absolutely horrendous and even the
> >>narcotic pain meds don't help. My neurologist told me he thought I had
> >>endo attached to the nerves causing the flare ups. I also meurlagia
> >>parastchetica sp? at my sciatica and my groin. I use ice packs when it
> >>gets real bad but have alos been to the er because of the pain and
> every
> >>time I do they accuse me of being a drug addict and of "cruising" er's
> >>to get demerol. So now I have to sit at home and deal with the pain
> >>myself. A side note- I think we really need to get proactive in
> setting
> >>up some sort of lobbying committee to stop the prejudice of women who
> >>can not live without pain meds for their excruating pain. I mean why
> is
> >>it ok for other people with chronic pain or cancer to take them and
> not
> >>us? Do we have to have a disease in which the outcome is death in
> order
> >>to be able to live somewhat more comfortable lives? Man this is the
> most
> >>important issue to endo sufferers as far as I'm concerned.
> >>
> >>praying for pain free days,
> >>tracy s.
> >>
> >>>From: Corinne297@aol.com
> >>>Reply-To: endo@obgyn.net
> >>>To: Multiple recipients of list <endo@talk.obgyn.net>
> >>>Subject: Re: endo on legs
> >>>Date: Sat, 6 Mar 1999 21:44:12 -0600
> >>>MIME-Version: 1.0
> >>>From anonymous@obgyn.net Sat Mar 6 20:13:57 1999
> >>>Received: from talk (anonymous@obgyn.net [127.0.0.1])by talk.obgyn.net
> >>(8.8.8/8.8.8) with SMTP id VAA21342;Sat, 6 Mar 1999 21:44:12 -0600
> >>>Message-Id: <3bfd45e8.36e1fc89@aol.com>
> >>>Errors-To: endo-request@obgyn.net
> >>>Originator: endo
> >>>Sender: endo@obgyn.net
> >>>Precedence: bulk
> >>>X-Listprocessor-Version: 6.0c -- ListProcessor by Anastasios
> Kotsikonas
> >>>X-Comment: OBGYN.net Endometriosis Pavilion mail service
> >>>
> >>>I too have a problem with my right leg. As of this point, they don't
> >>know
> >>>what to do about it. I've been to a neurologist and neurosurgeon and
> >>they
> >>>both said that it could be endo affecting the nerve endings anywhere
> in
> >>my
> >>>pelvis. The pain can be excruciating at times. I just wish there
> were
> >>a way
> >>>to make it go away. I can hardly drive some of the time and can only
> >>sit for
> >>>short periods of time when it is really acting up. For the most
> part,
> >>I try
> >>>and live with it but there are times when I have to take percoset to
> >>take the
> >>>edge off.
> >>>
> >>>Corinne297@aol.com
> >>>
> >>Get Your Private, Free Email at http://www.hotmail.com
> >
> >--
> >Tracy,
> > It stinks when the hospital staff looks at you as a medication
> seeker. I have a girl friend who has a condition called paracarditis, it
> affects your heart. It hurts to carry a gallon of milk. She is only 31
> and to look at her you would not know that she cannot work at any job.
> She too has to go to the hospital and have demerol shots almost monthly.
> They now know that she has to have them but before they would always
> give her crap. I asked her one day what it was like to have people look
> at you funny when you park in the handicaped spot? The tears started to
> fall and she said it hurts to be judged by her looks b/c she looks
> (normal). So just remember you are not alone, when it comes to needing
> to have the pain shots.
> > Good luck and Hopes,
> >
>
> Get Your Private, Free Email at http://www.hotmail.com
>

sorry you had such a horrible experience!!!! will keep my fingers crossed that the next doc is mch better!! Good luck amy

Next message: allan: "Re: vaginal pain"
Previous message: kmckeigh: "Re: Help in cleveland OHIO"
Maybe in reply to: Michael/Christine: "endo on legs"
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Reply: Tiina: "Pain meds - Tracy"

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