Re: Endometreosis/infertility
From: Renee (anonymous@obgyn.net)
Sat Feb 27 09:21:56 1999
Hi!
Patricia, my name is Renee. I am an endo veteran, and thought I would
contact you directly. I know the pain, the infertility, the lack of
qualified doctors and the damage these drugs can do. Here's what I did
to put the disease in remission -- that means I am pain free. I called
the local chapter of the Endometriosis Association and asked for a
referral for a qualified endo specialist. Most obgyns are not trained
to treat endo effectively. I wasted a lot of years on my
well-intentioned doctor. I'm in California and would be happy to refer
you to someone here if that's what you would like to do. You can access
the Association Headquarters via the obgyn website. It was the
best thing I did for my health and well being. There are doctors who
can help you; they are not widely known because they are the
specialist's specialist.
Take Care.
At Sun, 21 Feb 1999, PATRICIA wrote:
>
>Dear Lisa,
>
>I am 30 years old and was officially diagnosed with Endometriosis in
>1988. I was told my my doctor then to start trying to have a baby to
>put myself into remission. As of that time, to current, and beyond, I
>will continue to try to conceive as it has yet to happen. In 1994 I
>began taking a drug called LUPRON, it was the worst experience I have
>ever had in my entire life, with extreme long term, and what I feel is
>lifetime effects and damage. After taking this drug for 6 months my
>period returned 2 months later with more severe pain then I started
>with. In 1995 I found out I could have a laser laporascopic procedure
>that would remove the Endo. September 1995 I had this surgery and I
>felt like I had a new life again I lost 50 lbs and felt great for about
>2 years. Then the debilitating pain and associated migraines returned
>in full speed if not faster. I again had another laser surgery in in
>Feb. 1998, expecting to be just fine again, with absolutely no results
>at all and I have also gained back 45lbs. I am at the end of my rope in
>all this, sometimes I feel like im gonna lose my mind to the pain. I am
>still trying to conceive (it has been 9 yrs now), with no luck at all
>and dwindling expenses. My doctor wont do another surgery and it has
>become unbareable to deal with the pain. If anyone out there knows of
>any new procedures other than hystorectomy, I AM BEGGING YOU TO PLEASE
>E-MAIL ME WITH ANY INFORMATION.
> E-MAil Address Hotsxyswt@aol.com
>
>--
>Sincerely
>Patricia "Trish" Krause
>
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