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Re: Newbie/Introduction & Questions

From: Annie (anonymous@obgyn.net)
Fri Feb 5 10:57:17 1999


Kim, Grimace, I completely understand. When I went in for my last surgery to remove completely all of my female organs, I wanted to save some of my eggs to possibly have a serrogant mother have a child for me. My sister has a nursing friend who was going to school to become a nurse in the baby ward, she did not want to have any children herself but to better understand her job she wanted to go through the experience and was willing to do that. However, my DR talked my out of it and made me feel stupid because after all I already have 3 children. I can kick myself for not believing in my decision more. If there still is a chance for you to conceive, than I wouldn't make any quick decisions. Besides, if you do get pregnant, than your endo would subside, probably for quite a while. I know that I am not a DR, but since I have alot of experience, through my 10 years of trials, every DR has a different opinion and option. There is always new developments with endo, and always, I mean always a new way of looking at things. You can always have your lap done to have your tube removed anytime. It doesn't have to be on the 11th. You will know when you made the right decision. Maybe you should talk to your local University about this. Here in Seattle we have a great University that I would recommend to anyone who has more researching to do. Bye, and good luck, remember, your tube might not be the breading ground for the endo and that that might just be his expert opinion. Annie Smith BUCKSIE@Prodigy.net -----Original Message----- From: anonymous@obgyn.net <anonymous@obgyn.net> To: Multiple recipients of list <anonymous@obgyn.net> Date: Friday, February 05, 1999 4:02 AM Subject: Newbie/Introduction & Questions

>Hello all...I am new to the list and have been reading the posts for the
past >week or so. I appreciate so much being able to learn through other's
>experiences with endo and to know that I am not alone!!
>
>A little background on myself (long story, short version)...I am 30 and
have >been diagnosed with stage IV endo with severe adhesions for ten years.
I've >had two laparotomies and two laps (three surgeries in 1991 and one in
1994). >My right tube and ovary were removed when I was 21 (the gyn wanted to do a
>hysterectomy but I wouldn't let him). I did a 6 month cycle of Depot
Lupron >in 1993 which helped "kill off" some endo. My husband and I have tried
Clomid >and Pergonal together with IUI to try and get pregnant. So far, so
success. >My RE is recommending IVF but we simply cannot afford the out of pocket
>expense.
>
>I have a couple of questions that I would welcome everyone's comments on:
>
>**I'm scheduled for another lap on 2/11. My RE has encouraged me to have
my >remaining tube removed as it just "causes me problems" and is a "breeding
>ground". (At my last lap, adhesions were holding the tube flat against the
>back of my pelvis.) My fear is I am giving up my last chance at pregnancy
>without IVF. Should I stick to my guns and have him just clean it out
and/or >free it up from any adhesions? Has anyone else been encouraged to have
their >tubes removed?
>
>**I also have a nodule of scar tissue or adhesions on the cul de sac (not
sure >of the proper terminology?) that causes me a lot of pain (together with
IBS, >it is a real joy!). Is this nodule something that could be removed through
>the lap? I don't believe it was there at my last lap in 1994.
>
>**After my second laparotomy, the doc (not the one I see now) told me that
he >had "severed the nerve to my bladder" ON PURPOSE because he felt it helped
>with pain management. Now and for the rest of my life, I really have to
>concentrate to urinate. Sometimes, it will take me up to 5 minutes to
start >to go. Has anyone else ever heard of such a thing? I almost think he made
a >mistake and told me he did it on purpose to cover himself.
>
>Sorry, if I have rambled...thanks for listening.
>
>Kim G., Wichita, Kansas
>




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