Re: bladder infections
From: Anita (anonymous@obgyn.net)
Mon Feb 1 11:03:23 1999
I'm new to the site and have been reading my first batch of emails from the
endotalk list. Reference has been made multiple times a show Oprah did on
Endo. I missed the show. Could someone please fill me in on it and what was
detrimental about it.
Thanks so much and I'm so glad to find others with this problem and an avenue
for exchange of ideas, sympathy, and treatment. I hope I will soon be
considered and Endosister as ya'll refer to each other. Yes, I'm from a small,
rural, southern town as you might be able to tell from the "ya'll".
Unfortunately, it has left me ignorant of my disease in alot of ways.
Anita
NC
Christine M. Smith wrote:
> Hi Toni:
>
> No, I'm not angry just sorry you are having such a hard time. I think
> your gyn may also be frustrated, not because he doesn't know what to do
> with you (although that is true, he's tried his best) but maybe because
> he sees that you aren't going to give the other options the full effort
> it requires. This is why you have to give the pain clinic a chance-if
> for no other reason than because the doctor you admire most sent you
> there and HE believes it is the answer for you. If it doesn't do any
> good after a reasonable amount of time, that's different. I'm sure he
> will be a lot more understanding if he believes you gave it your best.
> He will be frustrated if he sees you going from one thing to another
> without giving it a chance.
>
> I think you made the mistake going off the elavil. It's known that it
> takes a little while to work off the initial side effects-you are going
> to have to put up with some discomfort from that for a little while. You
> did say you thought it had an effect on the pain. I agree that the ones
> that caused the increased heart rate or the panic attacks are a
> different story. I wonder what your pcp recommends.
>
> You must be referring to enterocele. I'm not exactly sure what it is,
> something to do with the gut. A cele is like a sac.I don't know about a
> gyn repairing this, because I don't know what it is, but I do know that
> a gyn can not cut bowels and when there is a chance of that, he must
> have a general surgeon with him. Your case is extreme however, with all
> of your gut involved, not just the bowels that are down in the pelvis,
> like the sigmoid colon. Yours involve the entire abdomen. That is why
> I feel your case is out of the gyn's expertise. I would be more
> confident that a general surgeon would have more expertise handling that
> much of the bowel but that's just my opinion. If a general surgeon
> referred me back to my gyn I would interpret it as meaning he didn't
> want to touch it, and if the gyn wanted to, that was fine with him. I
> don't think surgeons exactly love adhesion problems. This is just my
> interpretation. In my case, the general surgeon was really hesitant
> about doing mine without first at least talking to the gyn and he ended
> up having the gyn there, but not as an assistant because I was never
> billed for it. In your case, I think you would be helped best by having
> both your gyn and a general surgeon operating. If the problem involved
> preserving my fertility, I would definitely want the gyn there, but that
> isn't the case with us.
> I don't see why they don't just do the lap-I know they like to wait 6
> months, but you have said they won't do another laparotomy. They don't
> have to wait six months to do a laparoscopy. The adhesions are only
> going to get denser.
> I think my bp is okay-that is a frustrating mess.
>
> Chris
>
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