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Re: Lupron and weight gain
From: Amanda (anonymous@obgyn.net)
Mon Feb 1 08:24:03 1999
Onagh,
Thank you very much for the support! I actually have an appointment tomorrow
with a different doctor. I'm bringing him several articles and also printouts
from other women here who have had similar problems. I've had an OB/GYN and a
reproductive endocrinologist tell me that my weight gain is my own fault. I've
decided they're wrong and I won't deal with them anymore! Unfortunately, they
were very good at performing surgery...even so, I couldn't take the bad with the
good.
Amanda
Onagh Levy wrote:
> Amanda-
>
> You are not crazy. The weight gain is not unrelated and a contientious MD
> would know this. It has been reported in many ways in various peer reviews
> of Lupron as hormone replacement therapy - more easily accessible to MDs.
> If he isn't reading the peer reviews nor is he keeping up with the latest
> medical research, he is a waste of valuable time and energy. My approach
> has been "How do I help you understand the disease so you can heal me?" if
> s/he isn't open to my input, then that doc is kaput! I've stopped wasting
> my time trying to educate the medical community. If s/he can't acknowledge
> me as an educated individual, then s/he is wasting valuable treatment time,
> and as far as I'm concerned, stealing my money and defrauding the insurance
> industry.
>
> My views are a little harsh, but I treat my body and this illness like a
> business. My bottom line is to get healthy. Giving money to a doctor who
> can't or won't help me is foolish, a waste of time and resources, and is bad
> Business sense. Yes, many docs are irritated with me, but my treatment is
> under my control, not theirs. Besides, when it is clear you know more about
> the disease, it's treatment options and the latest breakthrough's, the doc
> is forced to make a vital decision - A) intimidate you enough so that you
> can't use your knowledge to "call him on the carpet", or B) simply tell you
> he can't help you in the hopes you will simply go away of your own accord.
>
> If you are brining him articles, printouts of study's, etc, and he refuses
> to read or even look at them, it's time to move on. But I don't move on
> quietly. I send a complaint letter to the HMO. Yeah it's a lot of work,
> and yes it is frustrating, but until the general public is educated about
> Endo (not gonna happen anytime soon thanks to Oprah!) this is the way we
> must act to get results.
>
> Good Luck to you
> Onagh
> http://home.earthlink.net/~onagh/
>
> -----Original Message-----
> From: endo@obgyn.net [mailto:endo@obgyn.net] On Behalf Of Amanda
> Sent: Sunday, January 31, 1999 9:20 PM
> To: Multiple recipients of list
> Subject: Lupron and weight gain
>
> I'm hoping someone else has had this experience--I had three Lupron
> shots before my doctor stopped them. He said my reaction to them was
> too strong. I would faint at least 4 times per week, had severe nausea
> and gained 30 pounds in 2 months! The doctor insists that the weight
> gain was unrelated but I'm sure it wasn't. I went from 130 pounds (size
> 8) to 165 (size 14). This is unreal! My diet hasn't changed and until
> my endo got worse I excercised 4 days per week. Someone--please tell me
> you've had problems like this as well!! I need to prove to myself, if
> not my doctor that the hormones did affect me in some strange way...
>
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